Saturday, February 27, 2010
Thankfully it was only croup. Everything else came back negative. But, like every normal childhood illness with Kendall, she's not the norm. They gave her the Racemic Epi treatment and then watched her closely. We left with a still croupy baby, but crazed from the steroid and treatments. When she was calm she sounded OK so we were allowed to leave! I'm very thankful we didn't get sentenced to a night there. I'm sure the fact that they don't really have any beds didn't hurt.
I don't regret going to the ER at all. I usually think twice about it, fearful we are going to get there and she's going to sound fine and we'll be the parents who cried wolf. Sooner or later I'll get over that. But, of course, the night air did help her on the way in and she did sound better. I whispered in her ear to put on the theatrics for the nurse at the front desk so we could go straight back and avoid the germ-infested waiting room. Kendall then proceeded to lift her head off my shoulder and flash a big toothy grin at the nurse. Not quite what I had in mind.
But, being frequent flyers has its benefits, I suppose! No wait, and a private room, complete with warm blankets and peace and quiet made our sleepover less miserable. Our ER Dr. was great and so was our nurse.
Our orders were to touch base with the diabetic educator first thing today when sugars were off. So I just did that. We're pretty clear on what to do now. And Kendall already looks a thousand times better.
Endocrine stuff is so complicated. Sometimes the numbers just spin around in my head and it takes me a while to figure out the correct action. Sorting through that stuff when you haven't slept in 2 days is even harder. Thankfully our Diabetic Educators are the best!
Thanks for all your prayers...
Friday, February 26, 2010
I thought she was OK, so we went to our Speech Evaluation at Monkey Mouths. (more on that another post) Then on the way home she fell asleep for approximately 20 minutes with her mouth wide open. When we got home she was awake again and really fussy. Lots of suctioning, Tylenol, and 2 breathing treatments later, not much improvement. Right now she is laying red-nosed on the couch just kind of zoning out. Poor child. She needs sleep. And so do we!
Tomorrow I'm running the Cowtown half marathon. I'm excited since it will be my first time to do the Cowtown. I've run other half marathons, but have always wanted to run this one. I'm confident I will be fine physically, but I know I'll be worried about Kendall the whole time. She, of course, will stay home with Daddy. Maybe one of these runs Kendall will be well and able to cheer me on.
I'm so sick of her being sick!!! Ugh!
Wednesday, February 24, 2010
Monday, February 22, 2010
Kendall is feeling much better. She's getting her strength and personality back... Check out the video.
We had a great weekend. Justin made Kendall blueberry (Keto-cal of course) pancakes on Saturday morning...and she loved them. She's been eating a lot of fruit and cream, and whatever cream she doesn't eat, I've been pushing through her button. This gives her an opportunity to have more flavorful meals.
Our OT made some hands splints for Kendall to wear. Her purple neoprene ones are really difficult to get on, and since she doesn't really fist with her thumb inside them they were pretty pointless. She isn't bothered at all by these, and they place her wrist in a functional position. Hopefully she will begin to bear weight on her hands again soon. Right now, they are very sensitive. She doesn't have any aversions to different textures, just putting weight on them.
So that's really all that's been going on here lately. I haven't had any pressing information to share....and I think of that as a GOOD thing :)
Friday, February 19, 2010
They are still at a loss as to why this happened. But seizures cause damage. The damage causes more seizures. The brain tissue dies. Fluid forms in its place. And all of a sudden a totally healthy beautiful 3 year old is given a grave outlook. Dr.'s evaluate and report the worst outcome. Now a family with a totally healthy 3 year old boy is faced making decisions based on quality of life, a possible ""vegetative" state, facing a trach, g-button, limited mobility, lifelong disabilities.
Corey is very dear to one of my best friends Liz (pictured above.) It has been an extremely emotional few days, and I ask for all of you to lift up this family in your prayers. We are praying for a miracle at this point. Corey is a fighter. He can prove the Dr.'s wrong. We all know kids are way more resilient than we can comprehend. Most of us have seen or heard of MRI's that don't match the child, and children who don't match their MRI's. Physical Therapists always seem to have a more hopeful approach (and sensitive way to deliver it)than the Dr.'s.
As a "last resort" they are putting him on the Ketogenic Diet. This has worked a miracle for my daughter, so I pray it does the same for Corey.
A COMPLETELY healthy 3 year old is now on his 5th week in the ICU at Cook Children's Hospital. Why does this happen? It is heartbreaking.
Tuesday, February 16, 2010
Friday, February 12, 2010
Thursday, February 11, 2010
Wednesday, February 10, 2010
Monday, February 8, 2010
Friday, February 5, 2010
Wednesday, February 3, 2010
Tuesday, February 2, 2010
Anyway, I think today is the first of many new outings for the girls. So what if they couldn't care less...play dates are for moms anyway! Everyone knows that.
There's absolutely no reason why we can't join in on all the fun normal kids have right? Who knows, maybe Kendall will learn to like her chair sitting still one day! One can dream.
After story time we picked up her new glasses. They are actually thinner than before. I guess the number is higher, but before she had a huge astigmatism and now she doesn't...something like that. She seems to be seeing out of them really well. So that's good news.
Everything else is going well. Between our nurses being sick and several of K's therapists being sick, we've made out pretty well so far. Knock on wood.
Hope you all are having a great week!