Monday, March 29, 2010
Friday, March 26, 2010
Wednesday, March 24, 2010
And "dog" (when they bark or shake)
And she's back to saying "Dada"
We've also recently heard the B sound.
I'm thrilled. It is so fun to wake up in the morning and witness Kendall's speech evolving so quickly.
It seems when we can keep her healthy for an extended period of time, she makes huge strides in development. I feel so encouraged by this.
And, I have to tell you this story...I was with a few of my girlfriends Saturday night and of course, bragging about Kendall. I pulled out my phone (Blackberry) to show them the video. My one friend tried to pull it up, but it was taking too long to load, so I just kept "clicking" on video over and over on my phone until it said it was loaded. Then a video started playing.
Nothing could have prepared me for what came next. (the look on my friends' faces was totally priceless!!) The video playing was not Kendall's video at all. It was an "adult video." The first words out of my friend Sara's mouth was "is that Justin?" And I froze. Completely mortified. What the heck?! Immediately I called Justin and ordered him to my computer to make sure it wasn't on the blog that way...like if it was hacked into or something. Thankfully it was fine. And while we all had a seriously good laugh (the kind where your tummy hurts the next day) I'm still baffled by what happened on my phone.
So, if any of you had the same experience trying to view that video from your phone....and I really hope you didn't....please know that was not what I "captured!" Don't want to lose my Blogger privileges!!!
Friday, March 19, 2010
Tuesday, March 16, 2010
I've been considering music therapy for some time now. I've been looking into music classes for about a year, but something always came up. I was never too keen on the idea of a group class with other kids Kendall's age. Because of germs (and the heart-break involved attending activities among kids her age) it never worked out.
When Holly suggested we meet a music therapist who would come to our homes to meet with the girls, I decided that was the way to go.
Last week we did meet the therapist. Her resume is impressive, and upon our first meeting, I could definitely tell she has a heart for the kids. She seems very passionate and wasn't scared off by Kendall and Caleigh and all their issues :)
So this Thursday she will be setting goals and objectives during her first evaluation with Kendall. I'm very excited. Kendall enjoys all her therapies for the most part, but I'm certain this will be one of her favorites!
Music is a big part of my life...and Kamden's too. I know this will be something the whole family will enjoy. Because it will be private pay, we'll have to make a few sacrifices to make it happen...but we're ready to do that. (I won't get on my soap box and gripe about insurance not covering it...we want her to have it and feel confident it will help her, so we're taking matters into our own hands)
Monday, March 15, 2010
Kendall hasn't had a seizure in 6 weeks. This is the longest we've ever gone. Is it possible those nasty monsters are gone for good?
Oh, and she's interested in eating again. Not sure if it's the z-vibe exercises, and new oral stim exercises I've been neurotic about completing every day...or the love of mayo...whatever it is, I'm thrilled. She gobbled up her old favorite beef and broccoli super fast yesterday and today. Its not a pureed texture either. Its pretty chunky and she has to chew quite a bit. Now if we could just get her drinking again...
Anyway, so that's all good news! I pray the rest of the week continues this way!!
Saturday, March 13, 2010
For one thing, I have been completely emotionally spent with Corey's passing. I never imagined it would have affected me this way. I cried more tears this week than I have in my entire life. A healthy three year old boy taken too soon from his loving family is incredibly hard to comprehend. For me personally, it hit home in numerous ways. For one thing...I have a healthy son of my own...a child who completely changed my life unexpectedly at a very young age. The thought of something so sudden and tragic happening to him chokes me up. The things I have taken for granted with him, I never will again. So, watching Corey's mom Courtney make so many impossible decisions this week was life altering to say the least. Of course, it hit home too with our precious baby Kendall. The man conducting the service on Thursday night is the Chaplain in the ICU at Cooks. This man literally held my hand during some of the worst hours of my life. The reminder of our horrible week, a week when Kendall was unconscious and facing the very real possibility that she wouldn't make it, all came flooding back to me. No mother should have to face losing a child. But with Kendall (and I'm sure many mothers of medically fragile children feel the same way) Justin and I actually hope to outlive her. Our minds have been somewhat prepared for that. Although we don't know what the future holds for Kendall, we do know her complicated issues aren't going away. The thought of anyone other than us being responsible for her care is a difficult one. I think I had been hiding those feelings up until this week. This week I've been thinking a lot about that. It has drained me physically and emotionally.
I have to say that Corey's family has handled things with such grace. I am in awe of the way this family pulled together. Obviously this little boy has changed many lives.
Justin has been out of town and Kendall hasn't been sleeping at all. Fortunately today Nonny and Poppy offered to keep Kendall. Kamden and I dropped her off late this morning and have been spending the day together. We ran a few errands, then saw Alice and Wonderland and went for sushi. Now we plan to cuddle in bed and catch up on all our tivo'd reality tv. Then.....sleep!!! I don't plan on doing laundry or housework until late tomorrow. Sleeping, reading, watching movies, and relaxing is in my near future. Thank goodness!!! (and Nonny and Poppy.)
The weather has been beautiful here, so hopefully early tomorrow Kam and I can take Cooper to the park for a run. Then, by the time Justin gets back into town and picks Kendall up, I will be back to my human form. (and not the crazy, emotional, stress-monster I've been all week :))
I promise to blog this week about the exciting Music Therapist and new Speech Center that will join our weekly agenda with Kendall. And, the latest Kendall accomplishments!! Goodnight!!
Friday, March 5, 2010
Thursday, March 4, 2010
Tuesday, March 2, 2010
Kendall didn't sleep last night at all. I tried to get in a nap a little while ago, but since I drank so much coffee, I just laid there twitching and thinking of all the things I have to do. I'm sure I will crash eventually...
Kendall is doing better. She just seems like she has a cold now. Hopefully tonight will bring rest and tomorrow will be even better.
By the way, for those of you concerned...my blog identity crisis is over for now! I guess changing my blog background is the equivalent to me wanting to rearrange furniture in my house. Except much easier on my back. I was feeling unsettled do to the lack of sleep, therefore I couldn't commit to a background for very long. I don't know. I told you I'm a bit neurotic. But I'm over it now :)
Hope everyone is has a great week.
Monday, March 1, 2010
It dawned on me this morning (no pun intended) when I awoke at 4:30 to check Kendall's sugars. My amazing 6 foot 5 husband was sleeping soundly on approximately 6 inches of sleep space on the side of our bed. Kendall slept in our bed last night because she couldn't get comfortable in her crib because she had to be propped up. Chloe the 90 lb black lab was at the bottom of the bed making herself comfortable under Justin's legs. And Kendall had inched herself off the pillow propping her up all the way over to Justin's cheek. Snoring right in his face. He didn't even flinch. I'm sure it was a miserable night's sleep, but he didn't complain once! I must have bitched and moaned a hundred times this weekend due to lack of sleep and sore shoulders from carrying Kendall, but Justin didn't complain at all. (well, ok maybe a little in the wee hours of the night Saturday...but who could blame him!?)
Trust me, I know I'm a lucky girl to have a husband who is such a good daddy. He works super hard all day, and as soon as he walks in the door, he eagerly takes Kendall from me to love on her and hold her until bedtime.
I know from experience that raising a healthy child isn't easy for a mom who works full time and has to care for a child and keep up with all the household responsibilities. And caring for a special needs child is even harder. So I certainly do not take for granted that Justin is so selfless and loving that he puts Kendall's needs and mine before his own. Men like him are few and far between.
So I just wanted to post this to let him know how much I love him, and how lucky I know I am to have him. He's given up his bachelorhood. His quiet house, free time, and spending money, all to provide for me, Kamden and Kendall. And best of all, he's done so with a smile on his face. He's always happy to see us (or at least acts like it :)) at the end of the day. He always makes me laugh. And even though sometimes it makes me crazy that he leaves his dishes and clothes all over the place, and completely tunes me out while playing video games, he is the love of my life. I'm blessed to have a male role model for Kamden who models what it's like to be a man and step up to the plate when the going gets tough. He never quits. And I know that is hard to come by, especially in a situation like ours.
So, Justin, thanks for being such a good daddy. I love you dearly.
Oh, and by the way, do you think you could use some of your vacation time this spring to care for Kendall so I can head to the next TRAIN concert series in North Texas and Oklahoma?!?!? xxoxoxoxox
So we took her in.
I'll save some time by not recapping the whole experience there. It was almost exactly the same as Friday night. This time they were concerned it had moved to her lungs. So of course we were whisked back right away, bypassing an even more crowded waiting room. They ordered a throat x-ray and lung x-rays. And gave her another Racemic Epi treatment which worked almost immediately. I asked to add a strep test just to be sure we kicked it.
All tests came back fine. She sounded better, and again we headed home.
Last night was her first decent night sleep in 4 days. Thank goodness. I was unable to sleep though. Worried she may have stopped breathing or her sugars were high, I checked her like every hour. So I'm totally spent and praying when she wakes up she doesn't have a repeat of the days before.
Poor child. She needs a break. This croup virus is soo nasty, and has knocked her on her little bottom for sure. I just want her to feel better.