tag:blogger.com,1999:blog-3571346434199766550.post1665365558531386954..comments2023-10-06T17:57:26.991-07:00Comments on Kendall's Hope: Odd Movementsjocalynhttp://www.blogger.com/profile/07313874191250865765noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3571346434199766550.post-41848186651850162502010-01-22T14:42:15.677-08:002010-01-22T14:42:15.677-08:00You have many applaudes on this side with Kendall&...You have many applaudes on this side with Kendall's new skill tracking:)but not so happy about those nasty seizures;( Good call on doing what you feel is best for your little girl always listen to your "mom heart". As for the one day cure for Type I Diabetes "Awesome" for Kendall and all who live with this everyday.gildanoreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-88995210530130575122010-01-22T11:53:35.527-08:002010-01-22T11:53:35.527-08:00Poor baby....
I am totally there with you on the ...Poor baby....<br /><br />I am totally there with you on the seizures. We finally had enough and just came back from MUSC's epilepsy center. You all are in our prayers.Candacehttps://www.blogger.com/profile/04201448627487443779noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-38885261666610222722010-01-22T11:37:22.143-08:002010-01-22T11:37:22.143-08:00Finnian has one small eye the other is normal. Wow...Finnian has one small eye the other is normal. Wow her script is getting near to Finnians. Like Kendall Finnian cannot get the lenses implanted but what are their thoughts on contacts? Finnians last pair were pricy but well worth it. <br />Seizures are crappy. We have batteling some thing we had a weird nero appointment today they still cannot say seizures Ahhh I am ready to pull my hair out<br />GerBronx Cataldo'shttps://www.blogger.com/profile/00690890704919059565noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-38088895168378742942010-01-22T08:57:22.949-08:002010-01-22T08:57:22.949-08:00Sorry about the seizures still present...But at le...Sorry about the seizures still present...But at least, in spite of seizures you are seeing areas of progress and development...she is one tough cookie!Debbiehttps://www.blogger.com/profile/12469385508031005419noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-40717370432189797652010-01-22T07:55:41.439-08:002010-01-22T07:55:41.439-08:00I totally relate to your frustration with the doct...I totally relate to your frustration with the doctors not really caring. And the EEGs...you would think they are having to pay for these things themselves! The movements you are describing sound very much like what we've been seeing with Reagan. The head turning back and forth and the arms tensed up. Maybe it's chorea. To me it also looked strangely similar to a seizure but after seeing multiple doctors they have all assured me it's not seizures however it is chorea. Either way, I don't like it. Right now we're still not treating it because we too are sick of pumping her full of medications. But we'll see. I just want to do what's best for her and often it's hard to know what that is!Reagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.com