tag:blogger.com,1999:blog-3571346434199766550.post5367591243912429300..comments2023-10-06T17:57:26.991-07:00Comments on Kendall's Hope: The War Continuesjocalynhttp://www.blogger.com/profile/07313874191250865765noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3571346434199766550.post-88806680419554137922009-09-08T18:58:21.713-07:002009-09-08T18:58:21.713-07:00Oh Girl...keep fighting...you are amazing and you ...Oh Girl...keep fighting...you are amazing and you guys are an inspiration whether you know it or not...we all need to take a lesson from Kendall! Proud of you for the Mother you are!Karahttps://www.blogger.com/profile/13483019304630066551noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-31581980719595462702009-09-03T07:40:40.449-07:002009-09-03T07:40:40.449-07:00I am sorry about all this girl. Mike tells me he f...I am sorry about all this girl. Mike tells me he feels he is in the trenches everyday, and I feel so guilty about not being there. I do have one question. Does Kendall lose oxygen during her seizures? Jude has "cluster" seizures so he doesn't lost any oxygen, and therefore he doesn't require the seizure med intervention. They administered a dose at Cooks, but I checked witha neurosurgeon there, and several other neurologist who said if he wasn't losing oxygen there wasn't any need for medical intervention. Who knows though, but we have gone by that rule. Just thought I would ask. Sure hope things get better soon.Jennifer Ortizhttps://www.blogger.com/profile/14350225247489608653noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-53632760347560064842009-09-03T04:52:02.647-07:002009-09-03T04:52:02.647-07:00I am so sorry to read about more seizures. I am p...I am so sorry to read about more seizures. I am praying daily for Kendall and your whole family. <br />BarbaraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-32540873730667291112009-09-02T16:37:36.590-07:002009-09-02T16:37:36.590-07:00She is on the wafer I guess. It melts in her mout...She is on the wafer I guess. It melts in her mouth. Im not too terribly worried about the tiny bit of sugar. We've given her 3 servings of apple juice to bring up blood sugar and she's still has large ketones. All of her other meds are supposedly Keto Diet approved...but I don't trust anyone anymore!!jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-72140897748154805652009-09-02T16:28:45.590-07:002009-09-02T16:28:45.590-07:00Question on the Klonopin is she on what they call ...Question on the Klonopin is she on what they call the wafer Klonopin or is she on the regular yellow pill? The wafer contains some sugars so we don't use them. We get the regular pill it comes in .5mg and we just half or quater them. We only use meds in pill form only even antibotics.<br />I know its probably the last thing you want to do is read a book but there is a story in it about a mom who was bring home here new premiee and his equipment and also bringing home her daughter from hospital she has type one diabetes. Sorry I cannot find the book right now but will send you the title once I find it I was a huge sanity saver for me after Finny was diagnosed with the seizures.<br />Hang in there girl its early days yet and everything has to settle down but it will.Bronx Cataldo'shttps://www.blogger.com/profile/00690890704919059565noreply@blogger.com