tag:blogger.com,1999:blog-3571346434199766550.post5753867905514236709..comments2023-10-06T17:57:26.991-07:00Comments on Kendall's Hope: Patterning?jocalynhttp://www.blogger.com/profile/07313874191250865765noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-3571346434199766550.post-6423278957447029122009-08-02T03:40:07.062-07:002009-08-02T03:40:07.062-07:00I think you are on the right track with the ketoge...I think you are on the right track with the ketogenic diet. I have my fingers crossed that you can drop all the drugs. <br /><br />As for patterning, it really depends on your beautiful girl and what she is willing to tolerate. We are just about to start (once the casts come off) a full on twelve months of hydrotherapy, swimming lessons, PT and feldenkreis. I'm hoping this combination will work for Moo. I think its about finding the right therapy for you and Kendall and sticking with it.<br /><br />Hope you enjoy your holiday.Jacquihttp://www.terriblepalsy.comnoreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-12502250173626592992009-07-22T20:22:26.427-07:002009-07-22T20:22:26.427-07:00awwweeee...I just read the other comment. So sweet...awwweeee...I just read the other comment. So sweet! Thanks for figuring out how to comment. I know that was a pretty big step for ya! It only took 93 posts. I love you guys.jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-46978628204901173672009-07-22T20:18:47.868-07:002009-07-22T20:18:47.868-07:00Barbara, thanks for your comment. I will go back ...Barbara, thanks for your comment. I will go back and read the post on "Bone Connections." I have learned so much from your posts! Keep 'em coming<br /><br />And Dad...seriously?? You and Justin never comment and when you do all you have to talk about is my wake boarding? No, there were no BEACHES in Waco, but we had the Brazos river and we did wake board. A LOT. Ask Amber. You two need to leave me alone!!! Geeze.jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-79082454032758037912009-07-22T20:14:54.712-07:002009-07-22T20:14:54.712-07:00Jocie, you bring great joy to Mom and me. You are ...Jocie, you bring great joy to Mom and me. You are so talanted and are on top of everything. Kendall and Kamden are very fortunate to have great parents like you and Justin, and blessed as well. WE KNOW THAT OUR LITTLE KENDALL is going to be the most amazing and wonderfull child that our loving God has ever made. She is special and so are you. I love you very much and will always be there for you. Keep up the good work, and keep your blog going. Love Mom and Dad.Unknownhttps://www.blogger.com/profile/16352865293845773834noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-28135228009579611652009-07-22T20:02:34.639-07:002009-07-22T20:02:34.639-07:00yea Jocie when did you wakeboard at Baylor and wha...yea Jocie when did you wakeboard at Baylor and what water did you use? There are no beeches in Waco that I know of. Big EdUnknownhttps://www.blogger.com/profile/16352865293845773834noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-77018757879531077242009-07-22T19:25:53.351-07:002009-07-22T19:25:53.351-07:00Standing helps preserve her musculo-skeletal syste...Standing helps preserve her musculo-skeletal system while her neurological system develops at its own pace. <br /><br />Bones and muscles get weak fast if not used. My last post on that is titled "Bone Connections" - about 2 months ago. <br /><br />There are reasons why everyone is not following the patterning protocol. The reasons are not walking around either. The research has been done, a while back. <br /><br />You are an excellent Mom. No doubt you researched the keto diet before taking that on, and doing the same for patterning will lead you to a decision, too. BarbaraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-66517885054343720562009-07-22T14:57:12.767-07:002009-07-22T14:57:12.767-07:00I have that book too! Haven't read it yet- hav...I have that book too! Haven't read it yet- have another one on the go 'loving your special needs baby'. Of course, that's not hard to do, but it has some really inspirational stories in.<br /><br />Kendall is very lucky to have such a wonderful Mummy<br /><br />Love always<br />XxxCarolinehttps://www.blogger.com/profile/17096098020841250245noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-30003056379011530572009-07-20T15:19:05.310-07:002009-07-20T15:19:05.310-07:00We used Stevia too. Seemed to work well enough. I ...We used Stevia too. Seemed to work well enough. I know what you mean about the institutes/patterning. I have read the book and a lot of it makes sense. Almost too much sense. Why isn't everyone following this? I think a lot of it is that the scientific research has never been done to back it up. I'm not sure why. But I do think some of it is definitely worth trying.Reagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-28495532718416931922009-07-20T12:47:20.299-07:002009-07-20T12:47:20.299-07:00Since when do you read my blog???
I did it in co...Since when do you read my blog??? <br /><br />I did it in college and it took a really long time to learn, it was just an analogy...I guess I could have said riding a bike, but that seemed a little cliched. <br /><br />Get back to work.jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-65621695182052251822009-07-20T10:52:30.479-07:002009-07-20T10:52:30.479-07:00Since when do you wakeboard?Since when do you wakeboard?Justinhttps://www.blogger.com/profile/17965226523696656693noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-57313198837553478682009-07-20T08:10:44.832-07:002009-07-20T08:10:44.832-07:00Hey Jocie...
I'm just getting back in town and...Hey Jocie...<br />I'm just getting back in town and getting caught up on all things Briggs! It sounds like the hospital stay went well. I hope the diet works out for Kendall, it sounds like it just might. You're an amazing Mom and if there is something I've learned over the last 9 years...WE are our child's only advocate and you are absolutely right - you know Kendall better than any doctor. Do what you think is best because you never want to look back and say "what if"...I've done it too many times and Aidan has been the one that suffered because I didn't go with my instinct and instead trusted a doctor who I thought knew better than little ole me... And...don't even get me started on TAKS...<br />Anyway - you're amazing and you have such a great family and a great group of friends who are there for you. You are truly an inspiration to everyone. Have a good week.Lorriehttps://www.blogger.com/profile/06707481848035525166noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-15485970471798899292009-07-19T18:37:15.551-07:002009-07-19T18:37:15.551-07:00You always make me feel better, but I wish both ou...You always make me feel better, but I wish both our kids had head control :). We are free the next weekend except for Emily's smile box drop off at childrens. Maybe we could get together??? I would love for Mike, and your hubby to chat again.Jennifer Ortizhttps://www.blogger.com/profile/14350225247489608653noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-71584928143195606722009-07-19T14:35:21.703-07:002009-07-19T14:35:21.703-07:00Kendall still does not have the greatest neck or h...Kendall still does not have the greatest neck or head control. Some of it I blame on vision, and some tone...but it takes quite a few pictures to find one where she is looking up! She has the strength, she just needs to work on the endurance! Kendall has very very low tone. She's always been floppy! But today at church, I watched her turn her head sitting in her chair from the right to left again and again because she was interested in the sound and lights! Baby steps!jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-55441066235706558322009-07-19T13:44:35.828-07:002009-07-19T13:44:35.828-07:00what an eloquent read, thank you for sharing. I al...what an eloquent read, thank you for sharing. I always learn so much from you, and your amazing amount of information. Oh and you don't even want to know what Mike said to tell the 17 year old..ha. <br /><br />I love the stander!!! Was Kendall fitted for this? You know one thing I have never asked you is how long did it take for Kendall to get neck control? Jude is still so floppy. <br /><br />I agree that we shouldn't just accept what they tell us, and press for more. Sometimes it seems so overwhelming though.Jennifer Ortizhttps://www.blogger.com/profile/14350225247489608653noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-46516500161173789932009-07-19T09:49:54.095-07:002009-07-19T09:49:54.095-07:00Jocie, I'm glad you guys are home and doing we...Jocie, I'm glad you guys are home and doing well. I enjoyed reading this post as well. You are amazing!!! Hope to see yall soon. <br />And you and Kendall are always welcome over to play. L&C would love it. Have a good week. I'm open to run any day this next week.TwinsRock08https://www.blogger.com/profile/10620168720192152891noreply@blogger.comtag:blogger.com,1999:blog-3571346434199766550.post-37672399477674226152009-07-19T08:50:23.082-07:002009-07-19T08:50:23.082-07:00Just when I think you can't get any more amazi...Just when I think you can't get any more amazing....I read this post!! YOU are fabulous!Jessicahttps://www.blogger.com/profile/09162433965230406853noreply@blogger.com