Kendall's Hope: Another Update!

Monday, July 13, 2009

Another Update!

1 comment:

Debbie said...: Just read your blog for the first time (found it through Reagan's)

My son, who is 2, suffers from horrific I.S./seizures. We have tried several drugs, and just last month gave up on the Ketogenic Diet. It is all very fresh in my mind, so if you have any questions, or need to bounce off anything, feel free to ask me. For some I know it has worked wonders, praying your daughter is one of them!

How old is your daughter? She is precious and I will keep her in my prayers.

Blessings and Hugs to you Super Mom!
Debbie
(You can read our story if you'd like at our caringbridge site...)

www.caringbridge.org/visit/hudson; July 13, 2009 at 9:55 PM

What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.