Jocie, what a great smile. This baby has it all, good looks, sweet smile and great teeth. Also you should let every one know that she is actuall laughing out loud. Believe it All the prayers are working. Thank you God she is your special child and we love her to death. Keep up the good work. I can't wait until we get to Destin. Big Ed
Through Facebook, I found this blog and just want to say she is the cutest thing ever and does she ever stop smiling? My little one is 18 months - didn't realize they were so close in age? And on top of that, we'll be near that white sand in Pensacola next week too! Lots of thoughts to you. Your friend, Ginger
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
music together
more music please!
clearly before keto diet and diabetes
About Kendall...
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)
8 comments:
you rock jocie.
oops.you rock kendall.
Jocie, what a great smile. This baby has it all, good looks, sweet smile and great teeth. Also you should let every one know that she is actuall laughing out loud. Believe it All the prayers are working. Thank you God she is your special child and we love her to death. Keep up the good work. I can't wait until we get to Destin. Big Ed
OK, I'm seriously jealous!! But so very happy for your family! Keep those SF days coming Kendall!
Through Facebook, I found this blog and just want to say she is the cutest thing ever and does she ever stop smiling? My little one is 18 months - didn't realize they were so close in age? And on top of that, we'll be near that white sand in Pensacola next week too! Lots of thoughts to you. Your friend, Ginger
Wonderful news! Jude has to get little hand splints too.
Thank you Kamden for praying for Reagan! You are a sweetie!!
Wow! That's awesome!
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