OHHHHHHHHHHHHH WEEEEEEEEEE, Kendall! Fantastic, sweet baby girl! I had shivers down my spine, watching her close those little lips together! I know you must be on top of the world, Jocalyn!
Awesome!!! Great job little Kendall I loved hearing that Thanks for sharing your special moment with us. Many Hugs and Kisses Kendall she is beautiful:)
Hi! My husband, Greg was a CMT with Justin. Greg and Justin chatted via email yesterday. Greg came home and told me about your little blessing, Kendall. I love to read blogs so I immediately went to check out yours. It sounds like Kendall has had a rough go. It also sounds like her Momma puts everything she has into her progress! Way to go! I am still reading all your blog entries. Kendall saying, "Mama" was precious! I'll check back for updates! Alicia
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
music together
more music please!
clearly before keto diet and diabetes
About Kendall...
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)
17 comments:
Oh my gosh...absolutely beautiful!
She is so beautiful..... and such loving parents too! God bless you both and always remember THESE moments!
OHHHHHHHHHHHHH WEEEEEEEEEE, Kendall! Fantastic, sweet baby girl! I had shivers down my spine, watching her close those little lips together! I know you must be on top of the world, Jocalyn!
eeeeeeeeeee! OMG! That is so incredibly exciting!
Way to go Kendall!
and mama too....all that hard work pays off :-)
so cute! Love it.
Hooray Kendall!!!! Way to go!!!
aww. that's adorable!
You rock Kendall!!!! Aunt Liz loves you....Keep it up baby girl...I'm coming over this week to play.
she is so stinkin' cute...but you knew that!
You rock Kendall!
Awesome!
Love that face, those sweet cheeks, those beautiful lips and the sound of Momma comming out of them!!! Give her squeezes for me, please!!!
Awesome!!! Great job little Kendall I loved hearing that Thanks for sharing your special moment with us. Many Hugs and Kisses Kendall she is beautiful:)
That's so wonderful! You are amazing, Kendall!
Sounds like heaven, doesn't it?
Oh my goodness....that is the sweetest video....Great job Kendall! Jocalyn, you must be beaming! Hope it's a great week for you guys!
Donna
Hi! My husband, Greg was a CMT with Justin. Greg and Justin chatted via email yesterday. Greg came home and told me about your little blessing, Kendall. I love to read blogs so I immediately went to check out yours. It sounds like Kendall has had a rough go. It also sounds like her Momma puts everything she has into her progress! Way to go! I am still reading all your blog entries. Kendall saying, "Mama" was precious! I'll check back for updates!
Alicia
Music to a mother's ears! I love it!!!
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