Kendall's Hope: My Musicians :)

Wednesday, May 12, 2010

My Musicians :)

Kamden and Kendall both love music! Kam's recent self-induced interest in the guitar has really surprised me. He's learned a few songs already, and loves to sing at the same time. Kendall continues to love music therapy. Her great therapist Nikki learned "Hey Soul Sister" on the ukulele...and it motivates Kendall to sing and play instruments! (thanks Nikki, for letting me post the video....even though you have a sinus infection and think your voice is rough...we think it's beautiful all the time :))

As much as I love my little musicians, I love big girl music too! That's why for my birthday tonight (yep, I'm 32 today) we're going to see the Josh Abbott Band in Ft. Worth...oh, and TRAIN again on May 22nd. I know...it's getting ridiculous. Who goes to see the same band perform in 5 different cities?! Um, that would be me and Kristin!

Kendall is moving right along with the Kidwalk (no pun intended.) She's getting more comfortable in it and has started to pick up her feet more. We're just going really slow with it, so it doesn't frighten her. Baby steps (ugh, there I go again!)

So, thanks for letting me brag on my talented young musicians. I'm a very proud mama!

5 comments:

Mo said...: I knew I liked you, a fellow Taurus! My 33rd was on Friday, the 7th.

There's nothing like watching your kiddo get that first taste of independent mobility...so glad Kendall is feelin' it in her KidWalk. Super!; May 12, 2010 at 10:25 AM
Candace said...: Happy Birthday Jocalyn! Girl, you really are making me jealous now, just kiddin'! Hope you have tons of fun!; May 12, 2010 at 1:41 PM
Sunnye said...: Wow, your kids are awesome. I'm Nik's mom and love seeing her work with kids. You have every reason to be proud of their progress. (It makes me a proud mom too.) Thanks for posting.; May 12, 2010 at 3:52 PM
Anonymous said...: Happy Birthday!
Donna (Yahoo Keto Group); May 12, 2010 at 7:53 PM
Amanda Ellis, MT-BC said...: Hey! I just came across your blog and love it! Looks like your little girl is making leaps and bounds of progress..in her own time. :) I am also a music therapist, and also LOVE the song Soul Sister by Train. I wanted to share that I adapted this song to be even more appropriate to sing with kids and you can hear it on my website, www.morewithmusic.org It's called Hey, Hi, Hello
I'd love to hear what you think!
Keep up the great work!
Amanda Ellis, MT-BC; May 27, 2010 at 6:30 PM

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What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.