Well, to start off with, Kendall's seizures have been about the same all weekend. Since our increase of the Vigabatrin, she has just been sleeping a lot! Last night she woke up every two hours (her norm) seizing. At around 5:30, I gave her some Keppra in a bottle and she went back to sleep until 10:30. So did we! We were suppose to go to church at 10:50 for Kendall to be recognized and prayed for, but we slept right through that. Oops.
We did end up having a magnificent day though. I was able to fit in a long jog before it got too hot. Kendall ate a great lunch, then we went in the back for some fun in the sun. I'm so excited Kendall loves the water. I know it will give her a great place to work her muscles, plus it is much easier for my mom to hold her in the water weightlessly. We enjoyed listening to the birds and lounging in the hammock together.
When we got hot, we jumped in the pool.
When we got hot, we jumped in the pool.
The boys only splashed Kendall once...
She was pooped, so she rested in her chair! (note the gold sandles her daddy picked out!)
It was a great day and we're looking forward to a whole summer of them!
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3 comments:
Ahhhhh....she just melts my heart!! I love the pic of her in the chair, so sweet!! And, I'm impressed with the gold sandles, good job Jussy!!! Still praying that those darn seizures get better. Love you guys!!!
Look SO CUTE!!! I love the pictures.
Excellent! I love water play for all children learning to move. So glad you had this wonderful day and expect more. Wishing Kendall fewer seizure-every-two-hours-nights.
Barbara
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