Kendall's Hope: New Computer!

Friday, May 15, 2009

New Computer!

OK... So, I got a new desktop computer...and can I just say...it is life changing. My screen is so much bigger than my laptop! I can now navigate Facebook way faster than before...and Blogger...oh. my. gosh. You people are so much cuter than you were before! I'm so excited!

Kendall drank out of a straw today. Speech brought a new Nuby cup that has a straw that actually changes its flow based on the child's sucking ability. Our Speech Therapist thought it would take her about a month to catch on...nope. She did it the second try. She was biting it a little, but she definitely sucked. So it begins...we underestimate Kendall, and she proves us wrong!

She's been a little tight. Her feet are pointing a lot and her heels have a lot of wrinkles. I have been stretching them a lot, but I'm concerned. If anybody has any suggestions to loosen her feet, please share. The PT's haven't really mentioned it.

Hope you all have a great SEIZURE FREE weekend!!!

4 comments:

Jennifer Ortiz said...: If you get advice pas it this way. Jude is pointing his toes a lot lately.; May 15, 2009 at 8:01 PM
Ellen Seidman said...: Congrats on the new computer. And, AMEN on a seizure-free weekend. And week. And further.
It is amazing that Kendall is drinking out of a straw, Max does not yet have that skill, and sometimes I despair about it, given that he is 6. As for the feet pointing, I wish I had advice. I used to massage and stretch Max, and that helped some, but you already are doing that. Stroking his insole also helped him relax.; May 16, 2009 at 1:04 AM
Jessica said...: GO KENDALL GO!!!; May 16, 2009 at 7:53 AM
Anonymous said...: Howdy. I waver between not making people search my blog vs. entering a url into a comment.

The post I recommend you start at is "Bone Connections" on April 1 - click the month under archives.

Are you uncomfortable bringing a question to your PT? She's really the best person to ask.

I really believe in standing (weight-bearing) starting at one-year. Usually braces and a piece of equipment are needed.

I think it is neat you get together with Jude's Mom and Caliegh's Mom.

And congrats on the new computer. Kind of like a new car, eh? I love technology! Barbara; May 18, 2009 at 5:55 PM

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What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.