I really didn't want to have to write this post...but figured I better since we have so many people who keep Kendall in their prayers and ask about her daily.
Yesterday when she woke up from her nap she had a 20 minute seizure.
It stopped after I gave her Klonnopin.
She's been drooly and lethargic ever since.
I'm very disappointed, but have licked my wounds and picked myself back up. Of course I know one seizure over a period of 7 months isn't bad. It is still so much better than we had before, but it broke my heart.
I've been watching her like a hawk, and treating her like she's made of glass.
I should hear back from the Neuro team to see what we need to do next. I'd take the diet over lots of medications any day...so if we need to continue on a higher ration, I'm good with that.
Her ketones have been fine still. Running blood ketones between 5-8 has been her norm on the 4:1 ratio, the 3.5:1 ratio, and the 3:1 ratio. So, I don't really know what to make of it.
She did have a flu shot last week.
So today the count starts over. Boo.
Tapestry of Grace, Year Four, Unit One
6 hours ago