Thursday, September 16, 2010

Well, Crap.

I really didn't want to have to write this post...but figured I better since we have so many people who keep Kendall in their prayers and ask about her daily.

Yesterday when she woke up from her nap she had a 20 minute seizure.

It stopped after I gave her Klonnopin.

She's been drooly and lethargic ever since.

I'm very disappointed, but have licked my wounds and picked myself back up. Of course I know one seizure over a period of 7 months isn't bad. It is still so much better than we had before, but it broke my heart.

I've been watching her like a hawk, and treating her like she's made of glass.

I should hear back from the Neuro team to see what we need to do next. I'd take the diet over lots of medications any if we need to continue on a higher ration, I'm good with that.

Her ketones have been fine still. Running blood ketones between 5-8 has been her norm on the 4:1 ratio, the 3.5:1 ratio, and the 3:1 ratio. So, I don't really know what to make of it.

She did have a flu shot last week.

So today the count starts over. Boo.


Debbie said...

So sorry to read this.

You are right though...7 glorious seizure free months...focus on that and we will pray no more break through seizures!!!

She is an amazing little girl!

Mo said...

Crap is right...(sigh). Keep us posted.

Maria said...

I'm sorry...but maybe that was the 'this-is-it-never-see-me-again-Good-Riddance' one... :) Hope Kendal is feeling better.

AngelaLexi79 said...

Well in our house we say "Pooh" instead of crap, but yeah that really stinks! 7 months is a long time though, I will keep ya'll in our prayers!

ANewKindOfPerfect said...

Oh man! I am so sorry. 7 months is such a long time. I hope that this seizure was just a wayward glitch and you are able to start counting time again. I hate seizures!

Anonymous said...

So sorry...I dispise Epilepsy and everything it does to our kids...Big hugs to you and Kendall.

TMI Tara said...

SO sorry to hear this. Thinking of you both and sending lots of prayers too. xoxo

Dawson said...

So sorry to hear this. I do know that awful feeling though. we made it 5 days short of a year seizure free. We will certainly crank up the prayers for your beautiful little girl.