Kendall's Hope: MIA

Wednesday, June 8, 2011

MIA

I am officially going to be MIA for the next 5 weeks. I'm taking braille...and it is taking over my life. It is suppose to be the hardest class in my master's program. I thought it would be a nice break from all the philosophy and over-thinking I had to do in my other classes...but unfortunately, it is incredibly difficult. I decided to knock it all out in a summer session. Bad idea. It requires 4-5 hours a day of practicing and studying...even on the weekends.

Kamden is out of school. We've had kids in and out of the house every day. These boys eat non-stop too. So, between my usual responsibilites with Kendall, sleepless nights, and Justin's travel, I am not pleasant to be around right now.

I'm sure nobody wants to read about my self-inflicted stress...so I won't rant any further.

Instead, I will leave you with a few fun summer pictures!

Kamden's last day of school and the last time to walk the halls of elementary school!

3 comments:

Amanda said...: What beautiful children you have...and that is so awesome that you are learning Braille. I don't know your story, but I'm just so happy to see that you are learning that!; June 8, 2011 at 10:57 PM
Terri said...: :) You WILL get through it...it WILL consume your summer, but you CAN DO IT! :) If you need ANY help, please dont hesitate to text me! :) Have fun! ;); June 11, 2011 at 4:21 PM
Debbie said...: Good luck with it all!

Will miss u over the next 5 weeks....but totally get it!

Ps....thanks for the app suggestions :); June 12, 2011 at 8:34 AM

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What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.