This has been a very busy weekend for our family with fall activities! And we still have two more days of fall festivals, a field trip at school, and trick-or-treating!
It is completely evident that Kendall has come a loooong way in the last year. Her tolerance for outside and crowds is astonishing! Her interaction and awareness of her surroundings and wants and needs is even better.
She did great at Daddy's work group family day at the zoo yesterday. We came home for a quick nap and then took off to a friend's Halloween party. There were tons of kids and Kendall was battling some high sugars (and a UTI diagnosed on Thursday) so she was less than thrilled about pumpkin painting, cookie decorating, breaking a pinata, balloon animals, and face painting....yes, they had ALL of those things! But she was very excited about the bounce houses. She desperately wanted to bounce with all the kids. Her brother laid down the law in the bounce house, and we put her in there. Unfortunately, she only lasted a few minutes before totally freaking out. But, I would have freaked out too with a bunch of rambunctious boys bouncing next to my head and not being able to move away. She cried the whole way home, but when we got home she did fine with the alternative, which was jumping on the trampoline. I was a little bitter about the whole deal, but today I'm better. We'll just continue to make adaptions for our sweet girl. Really, what else can we do?
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)