2011 went out with a bang. Sick kids for two solid weeks through Christmas break isn't fun, but we made the most of it!
But we're over it now. Everyone is on the mend. Both kids went back to school today and are back to their old selves again. Christmas is put away, and I've been purging junk drawers like a champ. I still have a couple more weeks until my school starts again. My course load is going to be tough, but I'm getting closer to my goal, so I'll plug on through!
I'm not usually big on New Year's Resolutions...but this year I'm making one. I'm going to stop apologizing when I'm fighting for my kids. Reality is, we are all just trying to get through life. But if your personal life results in you not following through on what you say you're going to do, and my kid suffers....I'm done with you. Done.
Beginning today, Kamden starts training for his black belt. To say I'm proud of him is an understatement. He's stuck with Karate, gone when he didn't want to go, and proven to me that he has the stick-to-it-iveness not to quit something he's started. That makes me proud. With that said, his schedule is going to be tough these next six weeks. Between guitar on Monday's, drama club on Tuesday's, and karate 5 days a week (yes...5!) plus schoolwork, it seems like a lot. He has a lot of work ahead of him! But he says he's determined and can do anything for six weeks. I just hope I can!
Kendall did end up returning to the ER last week. She was satting in the high 80's, low 90's, so we took her in. We've done some tweaking to her breathing treatments, and it seems to have worked. While there, we did discover another UTI, so I FINALLY took her back to the Urologist. We're not new to the whole UTI business. We're very used to discovering one, starting an antibiotic, switching antibiotics when the cultures come back in...blah blah blah. But today we did get some answers. She has blood in her urine again, so another bladder ultrasound and x-ray was ordered. Could be constipation, could be more kidney related, so we are also going to go back to the Nephrologist. A few months back I stopped going after they ordered an IMBG scan for high metanepharines. I felt that was a wild goose chase, and I wasn't prepared to go down that road. But, I will swallow my pride and go back to see what's going on with her kidneys. A type one diabetic at 14 months old wouldn't hurt to be followed by a Nephrologist, I suppose.
January's calendar is filling up fast. At least we'll hit our family deductible early in the year...
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)