Kendall's Hope: Right....

Tuesday, January 24, 2012

Right....

She's going to sleep like this for the next three months. OK.

5 comments:

Cassie said...: Caleb has to sleep with his legs banded together at night, although his isn't quite that fancy.; January 24, 2012 at 6:36 AM
Jennifer said...: No.way. Poor thing!; January 24, 2012 at 11:58 AM
Barbara said...: I just read the post above.

What.a.nightmare!

Wish I could offer you some other suggestions.

Speaking of old lady treatments - that wedge is just like the ones provided to adults who have had a hip surgery. I sure hope it helps prevent a surgery!

Have you talked to Jocelyn Leick about PERCS?

Hoping you both are recovered tomorrow and new options spring forth somewhere!; January 26, 2012 at 7:51 PM
Anonymous said...: Hi Jocalyn,
I am not even sure how I ended up following your daughters blog...somewhere along the way I think our daughters crossed medical diagnosis paths (my 4 year old has a genetic disorder and had infantile spasms as a baby). Anyway...to my surprise I caught up on your blog this morning to find that Kendall is going through the same thing my daughter Hazel is. We just got the same news from the orthpaedist last week (and kind of a surprise because her hips were fine 6 months ago). We are doing surgery in March followed by a spica cast for 8 weeks, Anyways, its a long story, but I just wanted to say hi and let you know your not alone! BTW...Hazel is also on a long term bactrim dosing schedule in order to get rid of a reoccuring uti.
Take care,
Colleen; January 27, 2012 at 4:48 AM
Anonymous said...: I wish to show my appreciation to the writer just for rescuing me from this particular trouble. Right after searching through the the net and finding concepts which were not productive, I was thinking my life was done. Living without the presence of solutions to the difficulties you've sorted out by way of your main short article is a critical case, and the ones that might have in a negative way damaged my entire career if I hadn't noticed your blog. Your talents and kindness in controlling almost everything was crucial. I am not sure what I would have done if I hadn't encountered such a thing like this. I'm able to at this time look ahead to my future. Thanks for your time so much for your impressive and amazing help. I will not be reluctant to refer your web page to any individual who should receive counselling on this situation.
Four Seasons 36474 Radiator Cooling Fan Switch; February 10, 2012 at 5:09 PM

What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.