Thursday, August 4, 2011
Calm After the Storm
Yesterday, Kendall's examination under anesthesia went well. They were able to avoid using a breathing tube (thank you Tera!) so she didn't need a steroid, and she didn't have to stay for 24 hours of observation!
Her prescription changed a bit, and they got a good read on her pressures. Unfortunately, they were extremely high. Her right eye was 39 and her left eye was 28. Normal ranges are between 18-22. Kendall has thick corneas, so that may be part of the problem. The other obvious thing associated with high pressures when a child has had cataracts removed is Glaucoma. Our Pediatric Ophthalmologist is discussing it with a Glaucoma Specialist he works with to form a plan. Kendall will more than likely start eye drops. If that doesn't work, we face the possibility of shunt surgery. Which sucks. Her eyes are growing though, so that's a good thing. Her right eye is ready for an IOL, but her left eye still needs to grow a bit.
She came home, had physical therapy, then slept for 4 hours. She also enjoyed a swim with Nonna for the first time in a few days too. She slept well last night and awoke this morning without any hives. Thank goodness. I just laid in bed with her for about an hour this morning soaking in her sweetness when she's not sick. It's good to have my girl back.
Thanks for all your thoughts and prayers. She's definitely on the road to recovery, just in time to go on vacation and start school.
This past week was yet another reminder to take it one day at a time. A friend shared this quote on Facebook that another friend on the CP board shared. So.Very.True.
"For all we have been through, there is so little I know for
certain except for maybe this: Motherhood is about raising--and
celebrating- the child you have, not the child you thought you
would have. It's about understanding that she is exactly the person
she is supposed to be. And that, if you're lucky, she just might be the
teacher who turns you into the person you are supposed to be."
Posted by jocalyn at 2:20 PM