My babies have had a wonderful first few days of school.
Kamden loves the independence Intermediate school offers. He found his classes like a champ, mastered the lockers, and is enjoying making new friends from other schools. He's pretty easy going and not much phases him. The only concern I have is his inability to keep a binder organized! Hopefully this year will be the year he gets it together! But I won't hold my breath!
Kendall held a crayon on her first day of school and colored with it. She's even been particular about which color she uses. Monday they talked about blue, and she would only color with the blue crayon! Tuesday she picked the pink crayon when asked what color a pig should be colored! They do a "Random act of kindness" award, and Kendall received the first one. When the teacher told me, I thought someone did something nice for Kendall...but that wasn't the case. SHE did something nice for someone else! A little boy was crying and Kendall reached out and gave him a comforting "pat." I love that she's showing compassion at three years old! Her brother was the exact same way at that age. I am so proud of her.
Things are going really well. My classes start this Thursday, so all of us will be back to the grind. I do better under pressure, so I'm ready.
Sadly, Kendall's Physical Therapist is quitting. I can't even begin to tell you how upset this makes me, but like everything else in life, we carry on! Today we have an appointment at the Cook's Therapy Center near our house for an evaluation. This therapist was our first PT when Kendall was five months old before we started doing home health. I think going to a center will be a nice change for Kendall too. They have new equipment and other things to offer her that we don't have at home. The fact that the new facility is within a mile of our house makes it nice too!
More busy days ahead, but everyone is healthy and happy, so we welcome them.
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)