Kendall's Hope: Daddy/Daughter Dance

Sunday, February 12, 2012

Daddy/Daughter Dance

Kendall and Daddy attended their first Daddy/Daughter dance on Friday night at Kendall's school. They had a great time fast dancing, slow dancing, and eating cookies. Kendall got a pretty rose, and she's all smiles when you bring up the evening.

They must have had a blast. And I can't wait to see the professional pictures! Apparently Kendall's teacher was able to do the "mommy" thing and get her to smile in pictures. I'm sure they're beautiful.

While Kendall and Justin were at their outing, Kamden attended his monthly SibShop hosted by our hospital. This month they went to an indoor water park and ate pizza. When I walked him in to the center, I was amazed at how many friends he has in that group. He calls them his "friends who get it." I'm so grateful he's developing relationships with other kids who endure similar situations at home with their siblings. And I'm thankful for the child life specialists who make the support group so fun.

Kendall did go to the ER for croup last Tuesday, and we cancelled our video EEG. We caught the croup early enough to avoid a racemic epi treatment and just give her a steroid. Her sugars were over 300 all day Wednesday, but she was back to herself by Thursday morning. Her little body is getting stronger.

1 comment:

Terri said...: What a sweet picture of Kendall and her daddy! :); February 15, 2012 at 9:13 PM

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What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.