Kendall's Hope: Santa

Tuesday, December 14, 2010

Santa

I haven't mentioned nursing in a while...we recently lost hours, then recently lost a nurse, so our extra help during the week has been cut by over 50%... and with Justin traveling ALL THE TIME, it has been an adjustment for me...but I'm dealing.

Anyway, our nursing agency,Vicvicare Health Partners, (owned by a few friends I grew up with) has been a huge blessing. They have such kind hearts and always go above and beyond to make sure our family is taken care of. I like to think I get special treatment, but I know they do the same for every family. They had a Christmas party last week complete with yummy food, a professional photographer, Santa, crafts and activities for the kids and siblings. They also had gifts for each of the children under the tree...Kendall got a toy cell phone and lap top which has been a big hit around here! They take amazing care of their nurses, which I believe is why they have some of the best too. And they donated $10,000 to Camp John Marc, a camp for medically fragile children. It was a great evening. (and I enjoyed seeing my friends and their families too!)

1 comment:

Anonymous said...: Wow! I am impressed with your nursing company, too!

You are good at 'dealing'.

The photos are great! (He's a very 'pretty' Santa!)

That is a treasured photo of Kendall and her Dad, I'm sure! Barbara; December 14, 2010 at 3:47 PM

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What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.