Last month at our Spacticity Clinic appointment, Kendall started a medication to help with her Dystonia. She began Artane and slowly increased the dose. Today she will be on the max dose which is a half a tablet three times a day, totalling 3mg each day.
Almost immediately we started seeing results. Her left hand opened up a lot more than normal. She almost immediately stopped all the arching she does when in a sitting position. Her toes aren't as balled up anymore, and she has been making a lot of new sounds. She's also back to using her pointer finger to touch things on the iPad.
At first, I thought I was crazy thinking something would work so well so quickly, but others have agreed with my observations!
This is a video of Kendall clearly crossing midline multiple times with a purpose. That purpose is being a little stinker and throwing the washrag I was using to clean her face off onto the floor. Justin and I are totally guilty of using reverse psychology on our ornery 3 year old. If you ask Kendall not to do something, she does it! I think it's kind of cute accompanied with her smile right now....but I'm sure that will change in the future.
We're just proud of her for interacting the way she does, and enjoying being a little girl. She's also back to loving listening to her brother play guitar, so he doesn't have to go outside in the 115 degree heat to practice anymore. Hopefully that will last.
Can you tell who runs the show around this house?!
Pretty good week
1 week ago