Not The Post I Was Expecting to Write (Updated!!)

I get big ideas. I also have the fire inside me when I get these big ideas, to make sure they come to fruition. If I get a big idea, and someone tries to tell me it's not going to work, I will find every way possible to prove them wrong. I've been this way since I was a little girl. Just ask my mom. It's who I am.

Unfortunately, this last big idea didn't go as I had planned, and I quit. Now, I'm struggling with the fact that I gave up.

So, let me back up. About two months ago, I watched the documentary "Including Samuel." It definitely had me sold on inclusion, and had me convinced that I should join arm in arm with my fellow moms of children with disabilities, and fight the good fight. The view is that this is somewhat of a "Second Civil Rights Movement" I was geared up and ready to challenge all who passed me. About a month or two ago, I attended a small (free) seminar on Inclusion at the ARC. It was a great meeting. The presenter was very knowledgeable based on her own personal journey with her son, and everything there was extremely black and white. I left thinking that full inclusion (with support) was the only way. Someone actually asked if the presenter thought there was ever another way. She basically said no, if the district is equipped with the resources to make it happen.

The combination of these two things really sent me into over-thinking mode. I weighed every option. If I was convicted in the thought that Kendall would and should only start out with full inclusion, it means she wouldn't be in Public Preschool for Children with Disabilities. (the program she's in now) The district we live in believes (and my personal view is EXACTLY the same)that the pre-school programs are for children with disabilities or children who are economically disadvantaged, or have English as a second language. These are public programs designed to give extra special kids, some extra special help. I'm all for it, and grateful we have such programs. But the view I found myself trying to adopt meant, I'd better walk the walk and talk the talk. SO, where would my daughter be going if she were three and didn't qualify for one of the free pre-school programs? She'd go to the same pre-school program my son went to at the church around the corner. (Then, we'd be able to have our nurse there with her full time, and she'd be learning a typical curriculum with other typically developing kids) It was an exceptional program, and he was more than prepared for Kindergarten....

Anyway, I thought Vacation Bible School would be a great way to test the waters. Needless to say, VBS ends at noon, and it is 11:00, and we are home. It didn't work out. But we tried.

There was nothing the church could have done differently. They have a great program director with loads of experience. They have caring volunteers with loving hearts. But they don't have teachers who have been trained on working and adapting things for children with disabilities. Therefore, Kendall was crying at the loud unexpected noises (other 3 year olds were too...) and she wasn't following along with the Bible stories. When I walked by her room with my group of pre-schoolers Kendall and her nurse were in there alone. That broke my heart.

The seven kids in my group were playing with markers, running around, coloring, listening, and full of excitement. They told you when they needed to go to the potty. They interrupted and blurted out answers. They were normal, typical, children. And Kendall is not. Period. There is no way to hide that. She's not like everyone else.

She was stared at. The kids asked questions about her and then moved on to playing with the other kids. The adults stared some more. She wasn't having fun. I wasn't having fun. And our incredible, awesome, loving nurse, would never have said she wasn't having fun. But I'm sure she wasn't.

So, this sunshine and rainbows view I had, and the fire in my belly to make sure this was a great experience for everyone, failed. Miserably. All it did was make me leave thinking this whole idea looks fantastic on paper. But it doesn't work. It doesn't matter if Kendall understands everything going on around her or the other kids all want to try and include her. It wasn't happening.

I came home and had a really good, long cry. I cried because I couldn't bring myself to have a genuinely happy heart helping the kids in my group. (Kendall was in a different class around the corner...maybe if she had been in my group it would have been different) I cried because while the other kids were learning of God's love and the message, all I could think about was why He couldn't have made Kendall like the rest of the kids. When the kids were doing arts and crafts, Kendall was in a room by herself with her nurse because she couldn't get a grip and would have been disturbing the other kids. It sucks. It isn't fair. And all inclusion did for me today was make me (and Kendall) sad.

The ARC seminar mentioned that all special education (and self contained classrooms) does for our kids is put them in "a very special room with very special people." And that only ends them (when they are over 22) in a "very special place with very special people" and as she said "those places aren't so nice." But today I think I like the idea of a very special place, where Kendall doesn't feel so different. And I don't feel so sad.

Don't get me wrong. I'm not giving up on inclusion as a longer-term goal for her. I hope for her to have a plan for inclusion in her next IEP. But I no longer long for her to be in a regular pre-school class. Kendall's happy where she is. And I'd like to keep it that way.

So, sorry this post doesn't have a picture of Kendall smiling, holding hands, and singing songs with other kids her age. I don't have one. I'm giving up on the week at Vacation Bible School after the first day. I'm quitting. It sucked.

I will; however, leave you with a picture of Kendall playing with her "very special" brother at the splash pad last week. None of the other kids would play with her. One mom even moved her child (by the arm) away from Kendall. That wasn't really a fun day either. But we tried.

I guess that's just it. We try. You never know when something might actually work out. And we owe that effort to Kendall. It isn't my job to change the world's view on disabilities. I think I've been blessed with these experiences so that I can work with "extra special children" and understand their "extra special parent's" emotional roller coasters. So, I'll forgo my picket lines for now and continue the course I'm on. Good thing I passed that braille class with an A :) :) :)



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I wanted to update this, because I tend to rant then move on....I'm bad at responding to comments (actually...I don't even know how to do it on Blogger!)

Thank you all for your comments, e-mails, facebook comments and thoughts. As always, this blog served it's purpose today. It helped me re-cap a situation, so I didn't have to tell the story to my family ten times! It also helped me get out emotions that would have otherwise consumed me.

I heard from friends who I think about often, and my spirits were lifted almost immediately. Thank you to all of you for your support. Thanks also to those of you who can empathize and know these exact feelings. It helps to know you're not alone.

I've said it before, and will continue to say that I feel so blessed that we have such an amazing team of people working with Kendall. I witnessed in my own teaching career people who should not be in education. I also hear horror stories all the time of IEP's gone bad.

Every student is different, ever family is different, and every educator is different.

I wanted to attach the e-mail below (with permission of course!) that I received from Kendall's TVI. (teacher of the visually impaired) It kinda just brought everything full circle for me today. I'm new at this. I'm learning as I go. I'm also a very emotional person and react quickly. And I am so lucky to have people in Kendall's life who can balance that out. It takes a village. And thank goodness I live in the one I do!!

oh, and Angie...our beautiful, smart, compassionate nurse, I would be a crazy person without you. Thanks for being my silent partner in crime :) xoxoxo


Jocalyn,
I read your blog a few minutes ago, and I wanted to tell you that I am sorry you and Kendall are having to go through this. I know you know this, but just remember that "inclusion" isnt an all or nothing thing. Just because she may not be ready for all the preschool activities NOW,doesnt mean that she wont be more ready in a year from now. Kendall progressed a lot in the few months that she was in PPCD with tolerating other kids, learning to be a student and dealing with the typical chaos of a classroom. She has 2 more years in PPCD and that really is a long time.
The inclusion seminar that you went to was good information, but that doenst mean it was exactly what is best for Kendall. There are extremes in every situation. If you look at inclusion as a spectrum and not an "all or nothing" or a "pass/fail" situation, then you can see that Kendall DOES fit into the inclusion game.
I taught kids in "those special classes" for 12 years before I got into the vision program, and I am telling you that as long as the program is run the way it should be run, that a lot of ground can be covered more efficiently than in so-called "regular classes".
I am sad that our educational system has not evolved enough that we still consider "special education" classes as somehow 'less' than regular education. Kids of all ability levels deserve a classroom that fits their needs, and those classrooms should NEVER be counted as "less": than the regular ed programs. I wish with all my heart, I could change that perception.
Jocalyn, I want you to know, that I do believe that Kendall will continue to learn and progress in whatever setting she is in. I see her someday in a classroom using technology to express her ideas, needs and opinions. Will she learn "differently"? Some people might say so...but I have to wonder... who is she being compared to? There is no other Kendall Briggs to compare her to,,, so the way I see it, she is learning the way Kendall Briggs was meant to learn. The point is SHE IS LEARNING. :)
I cant wait to see you both tomorrow. I just wanted you to know that I am thinking about you both and praying that whatever you decide for Kendall, that you will have peace and know that you are an amazing mommy...
Sincerely,
Terri