Kendall's Hope: So Sweet

Friday, June 12, 2009

So Sweet

I am blessed. I can have a terrible-horrible-no-good-very-bad day, but look what I come home to. My family cheers me up. They are the reason I work hard. They are the reason I do pretty much everything I do. They give my life meaning. They are so precious. It just doesn't get any better than this (Ok, well maybe winning the lottery so I could stay home with them every day...with lots of spending money, a house keeper, trainer, and personal chef)

3 comments:

Grow with Griffin said...: That made me smile SO big! I can imagine the smile it put on your face!!; June 14, 2009 at 2:51 PM
Jennifer Ortiz said...: So sweet!!!! I hope you guys are well. We haven't talked much lately. Let's get the kids together some time. Ps....I say we buy a bunch of tickets and split the mega millions; June 15, 2009 at 8:09 PM
Anonymous said...: Yea, a personal chef... oh, I mean, that video was precious!

Barbara; June 16, 2009 at 8:54 PM

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What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.