Wednesday, November 4, 2009

Not for the squeamish...


If someone had told me this was what a g-button could look like, I would definitely have reconsidered.


Poor baby did develop granulation tissue. Apparently this isn't too common, but I sure do seem to read a lot about it. Of course...uncommon, or rare, are words synonymous with Kendall. Fortunately, it isn't really infected. The green stuff oozing out isn't puss, its mucus. (gag)


They silver nitrated it today and it does look a lot better. The red irritation is pretty annoying though. Throughout the day it looks like a really blistered diaper rash. Again, poor baby.


So, why am I posting this picture? Because, in my twisted, unique brain, I find great comfort in knowing other people have been there. So if you don't think its that bad, let me know. If you think it is, don't. If your child's button looked worse, but now looks better, please share.


But whatever you do, don't ever, ever, ever Google granulation tissue. (or tape worms...but that's a long story)


17 comments:

Heather said...

Not bad,I've seen worse and Zoey has had worse.Silver Nitrate does help and so does ... good old Desitin(original,Calmoseptine and Ilex,found behind the counter at most pharmacies.I'd opt for Calmoseptine before Ilex though,especially if you are going to use a 2x2 gauze split,as it can really stick to the gauze.When will they switch her to a Mickey or are they going to?.Mickey's are a bit easier and the fit is the most important part ... so there is no leakage.

Okay sorry,long winded.Email if you have any questions and take heart .. it will get better .. promise.

Jennybell said...

When I was 16-19 yrs old I worked in a nursing home and we had a younger woman who had a feeding tube and I always had to help change it and UGH UGH UGH! One of the worst things ever!

Janis said...

I believe it is actually fairly common, especially with NEW G tube sites. Looks like you have a BARD? We started with a PEG tube an then moved to a Mic-Key button. We had one bout with GT and that was it. Ask for some Triamcinalone cream .5% WORKS WONDERS. Silver Nitrate will make it look worse before it gets better. ((HUGS))

Anonymous said...

One of my student's had a g tube and his nurse put maalox (sp) around it with gauze to help the irritation. Just passing on the info, but please ask one of Kendall's therapists if it is ok.

Candace said...

Jocalyn, No way not so bad. I know it seems like it when it's your baby, though. Faith had it alot for about 3 months, after she got hers. But she never seemed to be in pain. It got to where they just sent home the s.nitrate swabs home with me so I didn't have to keep driving back to the drs'. After it all healed up, she never had it again. That's been over 4 1/2 yrs ago! Chin up, momma, it will heal soon! One more thing, I'm not familar with her style of button. We have a Genny and we love it! Can you tell me about yours? thnks

jocalyn said...

It's a microvasive. That's about all I know!

I did ask for a Mic-Key originally...since we have a friend with one...and he said he wouldn't do that first, but it could be her second one?!

I don't know. We've been putting A&D ointment on it with gauze. It's only one of three approved Ketogenic Diet ointments.

I think triamcinilone is a steroid!?!?? I'm a little gun-shy of anything steroid related right now :)

Lacey said...

I don't know who told you its uncommon because its the most common thing with g-tubes. silver nitrate works great. And for the redness, some desitin or baza cream (what the hospitals usually have works great)

Anonymous said...

Not bad at all...

Pam

Anonymous said...

my son too had lots of problems at first and we had to silver nitrate it lots but finally once it healed it healed. our surgeon told us to stay away from the creams (if you can) the secret it keeping it dry. we used polymem around it (it is like a gausze pad but made of a pink foam) and when it gets saturated you change it. will help but can be expensive but medicaid usually covers it. we are on the ketogenic diet and it is a safe alternative since it is not a cream! jilldes@hotmail.com

Rhea said...

Hi!

Olivia my fifth had a g-tube til she was 2 1/2. She had NEC at nine days old. Unfortunately Olivia had tissue constantly growing. I did find that if it was kept dry and not moist it did not grow as quickly. I can't remember what we used around it, but I will email you when it comes to my brain. You cut a square and then cut it half way down the middle, but not all the way through. Then tape it to Kendall's skin. I'll let you know.

Bronx Cataldo's said...

We use the Triamcinolone cream on Finnian. You don't use alot and it does take down the inflamation. We just use a q-tip to put it on.
Its normal for them to get granulation tissue as its the bodies natural response to try and get rid of the button.
We also use the destin it we see some red around the site.
I have some pictures on my blog of Finnian with his tube out. There are some on you tube too of people changing them.
Ger

Cjengo said...

I think posting the pictures helps those who are going through, been through it, or might go through it. Thanks for sharing, hope she gets better.

jamie said...

milo's button site actually did get infected, twice! he has the worlds most sensitive skin...his was starting to get pretty red again recently and we got this stuff from the gi clinic called stomahesive and its like a barrier powder...it works so great under the split sponges we use between his button and skin, it keeps everything super dry, and for milo it's definetly the moisture that breaks his skin down.

Jessica said...

Man...I'm like you, enough already. And, of course, I had to google granulation tissue. I wanna know what all this stuff means and if you have to look at it then I want to look at. Maybe it is my lame attmept at trying to lessen some of your worries....I only wish it worked!!! Hopefully just knowing how badly I want your cares lessened is enough to help in some small way??? I love you guys!! Give the kiddo's hugs and kisses for us!

Debbie said...

Hudson had the granulation tissue several times, it would just re-grow and it took several trips to GI to have it burned.
I always kept that split gauze around his site with a little tape and it would absorb any secretions, which also helped the skin get less irritated. He has had his g-tube for almost 2 years and it is just recently I stopped using the split gauze. Have you tried using the split gauze?

jamie said...

i like the new look by the way!

Our Journey said...

hi, you dont know me but i stumbled on your blog today. i wanted to comment on the g-tube! we used to have the same one i think (is it microvasive?) i have alot of extra tubes in a bag if you would like them! also, we switched from that version to the mini-one which locks.. my sons kept popping out in the middle of the night and soaking him.. just a thought if you have the same issue!

your family is beautiful!! did you have pictures done thru littlest heroes? i frequent megans blog every once in a while and i think i saw your family there.. she did our pictures in december of last year!

take care,

gena