We have had a super week. Kendall is back on a schedule. She's sleeping better, eating well, and getting closer to where she was a month ago before our hospital saga. Her g-button looks a ton better....granulation tissue definitely still there...but the irritation around it is better.
We have a huge week next week with multiple Dr.'s appointments and follow ups. We get her AFO's and should have her new stander very soon.
I've been very busy getting everything with our insurance worked out. I thought transitioning to Justin's insurance would be seamless. Its not! And when you're juggling an Endocrinologist, Ophthalmologist, Neurologist, Epileptologist, Hematologist, Geneticist, Physical Therapist, Speech Therapist, Orthopedist, Occupational Therapist (yeah, I like to write all of them, cause I'm proud I know how to spell each of them...and I'm still working on pronouncing them) and home health agencies, its a slightly difficult transition.
But, I have a very exciting event coming up!
Barring any unforeseen medical issues with Kendall (fingers crossed) My sister and I are going to the Train concerts next weekend. Not one, not two, but three! We're making a road trip to Austin Saturday night, then Houston Sunday night, then back to Dallas Monday night. I guess you could say we're big fans!! :) I'm quite fond of Uncle Kracker too...and he's touring with them.
Jimmy Stafford (pictured above) is probably the nicest guy in the world. My sister and I have met him before in Ft. Worth and in Vegas (back in the day!) Anyway, he told me he's very grateful his daughter is healthy and feels for my family. So, he offered to give Kristin and I tickets to the shows. We already had them, so he's going to leave us after show passes at will call under my name. Yeah, I'm cool like that. And totally excited.
This will be the first time I've left Kendall for a weekend since she's been born. And other than business trips, I haven't really ever been away from Justin for a weekend.
I can't wait for a dark hotel room to sleep in. And I'm very much looking forward to a sister bonding road trip!! I'll be kid free and Austin bound in a week. YAHOO!!
I'll leave you with a little TRAIN for your listening pleasure...