I'm still alive. School is kicking my butt. It's not that it is hard really. It's just that I've become a perfectionist in my 30's. I definitely was not that in my late teens/early 20's the first time around in college!
All of the information on "exceptional learners" is really hitting home. I've learned more than I ever wanted to about IEP's and inclusion...at a very opportune time! Some days my head is spinning as I think about the ginormous journey we have ahead of us with Kendall's education. But most of the time, I catch myself thinking how other people (people who don't have the time or money to learn all the in's and out's of special education) do it. There is just so much to learn.
And it breaks my heart how many people there are out there that just trust their early intervention programs and school districts to guide them in the right direction. We have been very, very lucky with a great birth to three team, and hope to have the same continued success in the public school district, but unfortunately Texas is in a budget crisis right now and everything seems to be up in the air. That whole thing makes my head spin too!
So, I am alive...I've just been busy with school and life. (which leaves little time to blog about it!)
Kendall's had a runny nose and cough. Her lungs sound clear today, but if it continues past tomorrow I plan to take her back in to the Dr.
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)