My sweet, all-grown-up, snake catching, rough house playing, 10 year old boy made me very proud again last night!
He showcased his original song "Family" at his Spring performance. It is a song he wrote about a month ago for me. Basically, it is a letter written to me about his life, and the trials we've overcome together, and a promise that everything will be Ok, even when he's all grown up. When he first read the lyrics to me, I cried. When he put it to his own guitar music, I sobbed, and when I heard it last night live on stage, with a microphone under lights, I was beaming!
Of course, my camera wouldn't cooperate with me, so I didn't catch it on video. But we have ordered a professional copy. I was able to record his second performance, Davy Crockett and I will share it below.
This weekend with my sweet boy came just in time. I was reminded of his kind, boyish spirit. It almost made me get over the two office referrals (one for fighting, and one for cussing) he received this year, and the constant nagging he required on a daily basis regarding homework and practicing guitar.
He's still my little boy! And since he's been grounded from video games for 2 weeks, he's actually talking to me. Who would have thought?!
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)