We have our Kendall back! Justin took her to the eye Dr. yesterday and he said it was already healing. She started to eat again, and began smiling again on Sunday night. Thank goodness! We finish the last of the ointment today and we should be able to put this ordeal behind us.
The Neurologist's nurse called to day with the EEG results. Are you ready for this? It seems the Topamax is doing it's job. The patterns look as if they are going away. He doesn't want to change the medication at all yet. I had a few more specific questions, so she is going to talk to the Dr. and give me a call tomorrow. I feel so relieved and at peace right now...I don't know what to do with myself! Please keep the prayers coming! I'll update as I know more.
Due to "tough economic times" my company has done another round of lay-offs. I was spared again... (but my work load has pretty much tripled!) I should probably feel relieved and at peace with that right now, but it is very hard when others close to you have had their lives flipped upside down. It has been an emotionally draining past two days.
Turns out MY eye issue is just a dry cornea! My pressures are good too. (always a concern since glaucoma runs in my family) The drops are already working.
That's all I have for now! Hope you all have a fantastic week.
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)