Now Kendall has hives. At first we thought she may be getting sick. She has had a runny nose. We thought it may be due to recent exposure to Strep...but that was about a week ago and she hasn't had a fever at all. So hopefully we are in the clear.
The only change in her diet has been the reduction in ratio from 4:1 to 3.5:1. Basically, we are adding 2.6 grams of powdered sugar to her formula. We made this change when her second triglyceride levels came back as 861. Her diet has also changed in that we are replacing saturated fat sources with polyunsaturated or monounsaturated fat sources. (avocado, olive oil, flax seed oil.)
Oddly, this has caused her ketone levels to increase. Her sugars last night went from 270 at 8:00 last night to 320 at 11:00 even after a correction of Humalog. Needless to say, we stayed awake all last night testing her sugars after her second correction of Humalog, which should theoretically only last 4 hours. This morning she slept through a sugar check at 6:00 which came back....wait for it....yep....37. This child is so freaking unpredictable. More than half the time its a guessing game.
As if this wasn't enough, my new fantastic pharmacy failed to deliver. I checked with our Diabetic Educators to find out if there is ANY child in the Dallas/Ft. Worth area who happens to have the same situation with a baby diabetic who has insurance AND Medicaid. There isn't. It seems even the Dr. has encouraged us to drop our insurance and go straight Medicaid through our Medically Dependant Children's Program. That is pretty sad if you ask me. We should have everything covered without co-pays, but we are having difficulty finding a pharmacy with diabetic supplies who is contracted with Aetna and will bill Medicaid secondary for the co-pays. In the mean time, we have $450 a month worth of diabetic supplies. Not sure how we're going to figure this one out...I've never been a very good dancer :) SO, I guess I'll keep making phone calls every day until it is figured out. I hate to drop Insurance on Kendall, since you never know what Medicaid may change to, plus our pediatrician doesn't accept Medicaid either. Ho hum.
So please keep K in your prayers. We want these hives to disappear, and would love to find our where they are coming from. And if her blood sugars keep on this way, we will end up in the hospital, and I CERTAINLY DO NOT WANT THAT!!!!
Here's a picture of Kendall in her stander. I've seen major improvement in her vision recently. As you can see, she will turn her head to look at something if she really wants to! She usually gazes to the left, but here she is working to look at the tv on her right. I love it!!