Thanks for all the comments, phone calls, and e-mails I received after my last post. I'm better now. Sledding is over-rated for sure. Vodka is not.
After a wonderful lunch today with a few special mommas, I realized it's all going to be ok. My feelings are what they are. A lot of us have been dealt crappy cards, but we choose how to play them. I refuse to fold just yet.
My brain has been on overload since my first semester of grad school started (yeah, it makes me feel cool to say that!). I've forgotten what it's like to read chapter upon chapter of facts, statistics, and philosophies. Everything makes so much sense in the book, but then when I look at all of our lives and the practical applications for the families, it makes my head spin. The most recent chapter I read was about families of children with disabilities and their quality of life. Seriously. Quality of life. The divorce rates of families of children with disabilities is astounding. The poverty rate is even more shocking. It was pretty depressing...but definitely made me realize how lucky I am. Having a circle of friends in the "blog-o-sphere" has been a life saver for me. The books I've read on raising a child with issues (my most-favorite are pictured above) definitely made me realize it is ok to have a sense of humor about things. We have to, right?
I'd be lying if I said I wasn't second guessing starting school. Already through the online discussion threads (people get pretty brave behind their computers) it's made me seriously question some of the teachers in the system! But I'm sure the same could be said about general education teachers as well. I'd like to think people don't go into any type of special education for the money...most seem to be very passionate about their jobs and advocating for the families... but there's always a few people who just don't "get it." I'm just way too emotionally involved I guess.
With Kendall's initial IEP in a few weeks, I'm becoming more and more apprehensive. Not that I don't trust our district. I do. It's just such a big, scary world out there, and sending my 3 year old to school 5 days a week for 4 hours is a little unnerving.
So, I'm not really sure how I got on that tangent. Again, this blog is such a great way to hash out my emotions and move on. So that's what I'll do. I'd better get to bed. We're expecting another snow/ice day tomorrow... and I fully intend on bundling Kendall up and letting her play in the snow. Maybe not sledding...but baby steps.
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)