Kendall had two great appointments on her birthday yesterday. The first was GI. He wasn't convinced her arching was related to reflux. He agreed to start her on 20 g. of Nexium daily. The second was Endocrine. It lasted exactly 10 minutes! Her Hemoglobin A1C is perfect. We're doing a great job, and he didn't make any changes. yay! I love all our Dr.'s. Especially our Endocrinologist. He made it a point to say I know my daughter best, and should go with my gut! I asked him about the muscle biopsy to test for Mito and he also thinks it should be done. He suggested I have them do it and tell them I don't want to know the answer. Really? So, I'm still torn about that. I have on other Neurologist I am going to ask on Monday at our Spacticity Clinic appointment. This is the Dr. who told me when Kendall was really small, that no matter what...we should do things "for" Kendall instead of "to" Kendall. I'm interested in finding out what he thinks.
Kendall and I took a long walk this morning and visited my mom. She's still very, very, very sick. She looks and feels miserable. So please continue to keep her in your prayers. The Infectious Disease Dr. has ordered a bunch more tests to see if this could be something more than just typical side effects of the Interferon. It's a double edged sword for us. If it is something else, that just sucks....and if it isn't she may get off the treatments, and she only has a few more months to finish the cycle. Either way, her quality of life right now is not good. My dad, sister, and I are at our wits ends. It is exhausting fighting Dr.'s for answers. (trust me!)
This morning Kamden woke up feeling wretched. I made him go to school for his Reading TAKS test (in Texas this is the money maker for the districts. It is a terrible test which, in some cases, measures how well the teacher can teach to the standardized test. )I don't know what came over me, but my 9 year old who was already extremely nervous, (even though I knew he'd ace it) sick, and all I could say was "you don't have a fever, get dressed." As the day went on, and I began to feel guilty for making him suck it up and get out the door, I decided to make him an appointment with his pediatrician to rule out strep. Fortunately, all the tests came back normal and we left with 3 new allergy prescriptions for him! My poor child was red eyed, coughing, and cold sweating and forced to sit at his desk until the entire 3rd grade finished their tests, when he should have been resting at home. Ugh. They have the teachers, kids, and parents a nervous wreck about this test. It is definitely one of the things I don't miss about teaching 3rd grade.
So, after a bunch of Dr.'s appointments, it seems my trip on Friday is still a go! And let me just tell you...I am very excited!