So True to Kendall form...she's taking us for a ride.
We had the muscle biopsy, cauterization of her granulation tissue completed, the new button...a mini one non balloon, thank you very much, and her examination under anesthesia. Her pressures were high in her right eye, 38, and normal to high in her left. Her eyes are growing but her corneas are thick and may be the reason for the higher pressure? But that's the least of our concern!
We came home and Kendall turned blue from not being able to breathe. It was the most scared I have ever been with her. It was a no brainer to come back to the hospital. Of course we were taken immediately back, given a racemic epi and a steriod through her gbutton. Apparently she may just have that reaction to breathing tubes. The last time she had surgery she had the same thing. So were back in the er and I am using kendalls iPad to update! We are being admitted, not sure if we will be on the floor or the ICU. It just sucks. Again. I'm exhausted and will try to be more specific in later posts.
Thank you all for your prayers and encouragement. I will keep everyone posted through the blog. She is just the sweetest little angel in the world. Poor child woke up this morning with a grin on her face, and now she just looks miserable :(
Oh, and that muscle biopsy scar is really 3 inches long...
1 week ago