Wednesday, June 16, 2010

Oh Dear,

So True to Kendall form...she's taking us for a ride.

We had the muscle biopsy, cauterization of her granulation tissue completed, the new button...a mini one non balloon, thank you very much, and her examination under anesthesia. Her pressures were high in her right eye, 38, and normal to high in her left. Her eyes are growing but her corneas are thick and may be the reason for the higher pressure? But that's the least of our concern!

We came home and Kendall turned blue from not being able to breathe. It was the most scared I have ever been with her. It was a no brainer to come back to the hospital. Of course we were taken immediately back, given a racemic epi and a steriod through her gbutton. Apparently she may just have that reaction to breathing tubes. The last time she had surgery she had the same thing. So were back in the er and I am using kendalls iPad to update! We are being admitted, not sure if we will be on the floor or the ICU. It just sucks. Again. I'm exhausted and will try to be more specific in later posts.

Thank you all for your prayers and encouragement. I will keep everyone posted through the blog. She is just the sweetest little angel in the world. Poor child woke up this morning with a grin on her face, and now she just looks miserable :(

Oh, and that muscle biopsy scar is really 3 inches long...

3 comments:

Reagan Leigh said...

Oh my goodness! How scary! I will continue to keep her in my prayers...maybe next time they can try it without the tube? We had a really great anesthesiologist when Reagan had her last MRI and she managed to do it without even intubating her. Definitely unconventional, but oh so appreciated. I can't believe her scar is really 3 inches long...are you sure it's the incision and not just the bandage? I know Reagan's bandage was much longer than the actual incision. Hopefully that's it. Poor girl, she's had such a rough day! Continued prayers for all of you.

Unknown said...

So sorry sweetie... I know it is hard to see them so happy then the next time u see them they are all hooked up and drugged up or in pain (whatever the case) It totally sucks. I have only had a taste of what it is like to walk in your shoes and I so admire you. Stay strong and know that you are in my heart and prayers. I know God is not a respecter of persons and He loves U just as much! Hang in there even when it makes no sense. I will look for your updates...

Anonymous said...

Well, that was a fast deep drop on the roller coaster! Oh, Dear, indeed! Praying you both have a comfortable night and are home again soon. Barbara

(three.inches?!)