I may go crazy. My Internet is extremely slow. Kendall is sleeping a lot. So is Justin. I can't stop eating. And we may have just found out my mom have more health problems. (as if she doesn't already have enough!)
You see, while we're here trying to get Kendall started out on the Ketogenic diet, we thought it would be a good idea to practice checking glucose on each other. Harmless enough, right?
Um yeah, so mine was 93 (great), Justin 96 (great), Roxie: 151 (not so great) The thing is the woman already has to get her 5th hip replacement in November and she's starting Interfuron (or however you spell it)soon after that. Type II Diabetes...not a great addition. Seriously!?!
At any rate, its been a pretty rough morning. Kendall hasn't had anything to eat since last night at 6:00. Our Dr. doesn't make her fast for 24 hours like some. We will be able to start the KetoCal as soon as the poor baby goes enough in her diaper so we can check her Ketones. we did meet with the Dietician and shared some of our concerns. One being, I do still want to be able to feed her solid pureed foods. Eating from a spoon has been a skill we have worked very hard on. I do not want to lose that skill.
Seizures have been really bad. After she woke up from a nap, she had a cluster of 37 spasms in an hour. I had no idea she was having them every 2 minutes. We had trouble giving her Keppra in water this morning, but she did take her Vigabatrin and Topamax with sugar free jello. That will be the end of the Topamax. She can't have it while on the Ketogenic Diet.
I was surprised to hear we also have to be mindful of lotions, sunscreens, perfumes, etc...that are scented. Apparently the carbs in them can be absorbed through the skin?! (maybe that's why I cant shed these last 15 pounds of baby weight even though I run my butt off...)
I'll update again soon. Maybe today, maybe tomorrow. Blogging this week will give me a break and help me summarize my thoughts. Any and all comments are welcome. I always learn so much from my blogging friends who have traveled this road already.
Til the next time...
1 week ago