Thursday, July 23, 2009

Dentist and Eye Dr.


I guess I should start off by apologizing about the seizure video. I can't get it to upload and have lost my patience trying to figure it out.

The seizures are still there, and Kendall is slipping out of Ketosis. She is now in the moderate range so we are watching it and will hopefully know what to do by tomorrow. We've been following the diet very closely without any slips, so I don't know what could be going on.

Kendall went to the dentist for the first time yesterday. Everything looks good. Apparently she's about to cut 6 teeth all at the same time. I was also surprised to see she has already cut a molar. I've been worried about discoloration on her front two teeth, but he seems to think they look alright. We know she needs to be off the paci and the bottle, but we pick our battles with this one! I'd take a bit of tooth decay over a feeding tube. We will just start to brush her teeth more after her bottles...even though she doesn't have any sugar or juice. Guess we'll add that to the mile long routine we have for Kendall in the morning and night.

We went to the eye dr. this morning. He said everything has healed well, and we will just take it a day at a time. Our Pediatric Ophthalmologist is wonderful. He has said from the beginning we will do everything we need to give Kendall the best possible vision. But he (like the geneticist) is at a loss of what the cataracts have to do with the stroke. Apparently they are separate issues. We hit the "unlucky lottery" more than once. Nothing really new today, so I'll take that as good news.

Kendall's therapies are going to be vamped up in the next few weeks. We are adding speech and OT at Cooks in addition to ECI. We need a little more than what they are currently offering.

That's that. Please keep her in your prayers for no seizures.

4 comments:

Cjengo said...

I have been interested in additional therapy too, but we are going to wait until Jude is a bit older. Baylor has a place by our house called "our house" I think that seems to have great therapy. Cooks is awesome too. I hear ya on the unlucky lottery........sorry.

Val said...

I can't believe how big the girl has gotten- She looks great, going to the doctor's office. Her mom has great style!

Caroline said...

Aw, Bless her. Hope those teeth coming don't give her (and you) too much trouble.

Keeping everything crossed for seizure free days ahead!

Much love
Xxx

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