Caleigh and Holly came over this afternoon. They brought much needed good luck with them....cause we had a call from our Metabolic Geneticist while they were here. (I missed the call early in the day and it was the actual Dr. not an assistant! Usually that only means bad news.) Fortunately, we were informed that the Mitochondrial blood work they did all came back normal. She said she deals a lot with kids with Mitochondrial disease...and Kendall doesn't fit the mold. She also boldly said she knows better than the Neurologists and Endocrinologists. SO, praise God!!!
The past few days have been challenging for me. I guess mostly because Kendall's been in pretty sour moods between 3-5 every day. This also happens to be the most chaotic time of the day. She's been eating well, but of course, her blood sugars are all whacked out. So not much sleeping at night. Its hard on everyone.
We also found out 40 hours a week nursing has been approved and is ready to go. They will be sending our nurse out on Monday. Should be interesting. My understanding is that finding the right person will be a process. We'll see how it goes...
I just have to say that in this Special Needs world I have met some really amazing people. The therapists and case workers have become like family to me. Some of them just started reading my blog...but even if I didn't know that...I would still write the same thing! The ones here today in particular. Lindsey...who's been with us since day one in this journey...you have totally seen me at my worst and have always remained positive and encouraging! I am so blessed you came into our lives when you did. You are really good at what you do. And, Holly. Another mom who totally understands my vent sessions...and is filled with solutions (probably cause she's been there!) I'm so glad I stalked you at the Beeping Easter Egg Hunt! Mushy gushy really isn't my style, but please know your family means so much to mine.
Today was a good day. My cup is overflowing with love and friendship. :)