Tuesday, September 1, 2009

She's BAAACK

We have our Kendall back. Smiles, belly laughs, improved head control, more sleep, and best of all, she ate 5 4oz bottles of KetoCal and had 100 calories of beef and broccoli, and 100 calories of custard yesterday. Praying today is more of the same.

She is sleeping better, but we aren't. Last night we had another blood sugar scare. We set our alarms twice during the night to keep tabs on the blood glucose and blood ketones. Last night she went to 275 after running fairly high all night. Then we corrected it with her diluted Humalog and checked her again it was down to 54. Thankfully we (I...Justin slept) corrected it with juice and checked her for the next two hours. After calling the diabetic educator at 3:00am we decided to increase her morning dose of Lantus to one and a half units. Hopefully today they will even out. I worry about her Ketones since she had 3 oz. of apple juice. They have been ranging from 5-8 but have also gotten as low as 4. (regular diabetics that have ketones over 1.5 immediately go to the emergency room!) As you can see, this is really complex. Also, something I do not understand and neither do the nurses, her ketones go up when juice is given and when insulin is given?!?!

Anyway, we had a few therapy visitors yesterday. Today I cancelled therapies in hopes Kendall can get more rest. But I have two separate nurses coming today. One for an evaluation for increased hours, and the other for our scheduled visit. Having a nurse at least sets my mind at ease that her blood pressure and heart rate are good, and the congestion isn't in her chest.

We are getting back to a normal routine. I love being home. Not feeling like I have to rush off to work or get things finished by a deadline has really changed my mental state. I'm at peace and just enjoying my family and home. (except the dogs)

We march on.

9 comments:

Cjengo said...

Oh I bet this is so draining on you. I bet it is so nice to be at home. My dream is that Emily's Smile Boxes can be a full time deal and I can be with the kids......wishful thinking huh? haha! Anyway, I admire your patience, and strength so much. I hope today is a great day for you guys.

Heather said...

Home makes all the difference for everyone.Especially the little ones.Savor it and cherish it,as I know you are.Prayers continue here for you all.

therextras said...

More prayers answered and more continue.

Guess I don't know the story about the dogs.

I cannot imagine trying to be keotgenic and diabetic at the same time. Thank goodness for smart and good doctors and nurses.
Barbara

Reagan Leigh said...

I'm so happy you are all home and getting back into some sort of groove again. It will be great to have someone around to help out, especially someone who knows how to check her vitals and levels, that should help take some stress off your shoulders. Hang in there! Thinking of you often and sending continued prayers!

Lorrie said...

Great news! I hope she keeps improving. When things slow down a bit, let us know. We'd like to get the kids together. If you need ANYTHING, please let us know.

hugs,
Lorrie

Ginger said...

I am so happy for you and Kendall. New challenges now, but those four walls and your love has got her better... it's so amazing! I still would like to meet her, but I don't want to intrude. Glad you are home. What type of work were you in? Sounds very demanding.

Jessica said...

Great news! Home is usually just what the doctor ordered especially for little ones, so glad you guys are there!!! Hugs and love to you all!

Anonymous said...

I'm so glad that Kendall is back. I miss her belly laughs,and I'm sure you did as well....I'm so glad that the pressure of work is off your shoulders,and you can focus on your family. i still pray every day. Let me know when we can take Kendall for a walk in the park. It's so pretty in the mornings...Love ya Give Kendall and Kamden a kiss for me.....

Lizzy

Bronx Cataldo's said...

Glad you girlies are home. I always say our children are the teachers because they are always pushing us in a direction that we would normally never have ventured in. Life is an experience but our kids are living the experience.