We have our Kendall back. Smiles, belly laughs, improved head control, more sleep, and best of all, she ate 5 4oz bottles of KetoCal and had 100 calories of beef and broccoli, and 100 calories of custard yesterday. Praying today is more of the same.
She is sleeping better, but we aren't. Last night we had another blood sugar scare. We set our alarms twice during the night to keep tabs on the blood glucose and blood ketones. Last night she went to 275 after running fairly high all night. Then we corrected it with her diluted Humalog and checked her again it was down to 54. Thankfully we (I...Justin slept) corrected it with juice and checked her for the next two hours. After calling the diabetic educator at 3:00am we decided to increase her morning dose of Lantus to one and a half units. Hopefully today they will even out. I worry about her Ketones since she had 3 oz. of apple juice. They have been ranging from 5-8 but have also gotten as low as 4. (regular diabetics that have ketones over 1.5 immediately go to the emergency room!) As you can see, this is really complex. Also, something I do not understand and neither do the nurses, her ketones go up when juice is given and when insulin is given?!?!
Anyway, we had a few therapy visitors yesterday. Today I cancelled therapies in hopes Kendall can get more rest. But I have two separate nurses coming today. One for an evaluation for increased hours, and the other for our scheduled visit. Having a nurse at least sets my mind at ease that her blood pressure and heart rate are good, and the congestion isn't in her chest.
We are getting back to a normal routine. I love being home. Not feeling like I have to rush off to work or get things finished by a deadline has really changed my mental state. I'm at peace and just enjoying my family and home. (except the dogs)
We march on.
1 week ago