Kendall started wearing glasses when she was 3 months old. I remember the day we first put them on her well. I was so eager that THIS was going to be it! She would see! She'd start developing normally! We'd have a "normal" child with a small accessory! Little did I know!
As with most of Kendall's diagnosis, the first thing I seem to do is join a Yahoo! list-serve. You can't beat a bunch of strangers venting to one another, sharing experiences, and empathizing with you.
I quickly learned we weren't the norm, when everybody was complaining about their child ripping off their patches, or popping out their contacts, or pulling off their glasses. Not long after her cataract removal, but before her first EEG and MRI, I knew something was wrong. I actually blamed her not pulling at her glasses on her being so intelligent that she knew if she pulled at them, she wouldn't see.
After each surgery and procedure, I let the nurses put the "no no's" on her arms and left them there until we got home. Kendall didn't pull at her glasses.
She's using her hands more than we thought she could. And she pulls them off.
And over, again!!
I lost track today after counting 43 times! She does it more when she's bored. Like when she's in the jogger, or stroller, or sitting in her chair without interaction. She pulls them down (scratching her face) and into her mouth. Like a normal baby would do! Finally!
And, like a normal two year old, she grins at you when you realize she's done it again. It's a game. And while I'm thrilled to see her doing it, it's getting really old!
So, be careful what you wish for...sometimes, you just might get it!