Kendall's Hope: Happy Friday!

Friday, March 6, 2009

Happy Friday!

Ok...so I got out last night! Believe it or not! I went to spend a couple hours at a girlfriend's house to see pictures from her honeymoon and escape from my Kendall/work world for a bit! I had a great time catching up with them. I posted this picture because I know they read my blog, and I also thought it was HILARIOUS that Becky's dog jumped on Sarah during the picture and his big Boxer paw is in the picture. Sarah, Becky, Jill, I love you guys bunches, thanks for being great friends.

Kendall slept pretty well last night. She only woke up twice to nurse. I also didn't see or hear any seizures throughout the nigh. Hopefully the increase in Topamax and adding the B6 is helping. Here's what she looked like before I left last night. Don't you want to eat her up?

And finally...I told Jennifer I would post a picture of the Special Tomato chair ECI brought us. It came with a base, but our PT at Cook's told us it can do a lot of thing, like fit in a big stroller. It actually fits perfect into my IronMan jogger. Guys, this is life-changing for me! Now Kendall can go on long runs with me whenever I want. No baby-sitter needed! Guess now I don't have a good excuse not to run long distances anymore. Well, maybe the fact she weighs almost 20 pounds is a good excuse?!?!

Anyway, hope everyone has a great weekend! And to all of my dear friends through this Blogging world...may we all have a great and seizure free weekend!!!

1 comment:

Jessica said...: Awww..LOVE her shirt, she IS soooo stinkin' cute!! Give those sweet cheeks lots of kisses for me, wish I could do it myself though!!; March 6, 2009 at 11:15 PM

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What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.