Well...I have just a few minutes before we need to leave to go to the Hematologist...and I wanted to do a quick shout out to my mom!
Nonna is Kendall's primary care taker when I am at work. She also accompanies me to almost every Dr. appointment and therapy appointment! She is an amazing mother and grandmother. I know in the past I have put more than a few gray hairs on her head, but she has been there for me with the same smile on her face through thick and thin. She has the most positive outlook on absolutely everything Kendall related. She must have been a therapist, hematologist, ophthalmologist, speech pathologist, pediatrician, neurologist, etc...in a past life. Her faith in the Lord and His healing powers guides me and holds me accountable throughout this tough journey. She looks after my dad, my sister, my grandmother, all with a positive spin on everything. I'm sure she has her moments, but lately she has hid them from me quite well. Justin and I say on a daily basis how much trouble we would be in without her. And we mean it.
Throughout this experience, I often feel like I am stuck on a deserted island...as friends and even family members don't quite understand the every-day life around here...but my momma is always there with a smile on her face!
Thanks Mom! I love you and respect you now more than ever! Thanks for your patience with me and always being my cheerleader! LOVE LOVE LOVE you!
We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!
more music please!
clearly before keto diet and diabetes
Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09).Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is apossibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.
I like to say I'm a party- girl-turned-career-girl-turned-stay-at-home-mom to a son who's gifted and talented, and a daughter with special needs. My hubby levels me out, and I'm a lucky girl to have found him.(I kissed a lot of frogs!)
I love my life and all it's chaos. My family and close knit group of friends help me get through every day! I'm getting better accepting that God's plan isn't always my plan...and alcohol sometimes helps :)