We arrived home today. The flight was great, but security leaving Florida was a beating. The security guard wanding Kendall asked me "what's wrong with her?" I said "I'm sorry?" and she replied..."did she have an accident or something?" I was like, oh, no, did she have another diaper blowout...that would be just our luck right before we got on the plane! But, no, this security worker simply wanted to know why Kendall looked like she was sleeping, was in full extension, and strapped in a chair! (gosh, I almost forgot I had a special needs child...thankfully she was there to remind me) I could have taken this opportunity to enlighten her on childhood strokes, cataracts, seizures, etc...but I decided to ignore her. Technically, I was still on vacation.
It did take me a few days of sitting on the beach watching the children her age run and play to stop feeling sorry for myself. It still wears on my nerves when others make comments about how tired she is. She's awake people. Good gosh, her freaking eyes look 4 times their size in her glasses, can't you see that??!?!?! And if my child was asleep, do you think I would be dragging her around trying to take her picture, get her in the pool or the ocean? Probably not. She's awake. Oh, and when her mouth is opening and closing and she's turning her head over and over to the side, she's not yawning! And people should also teach their kids not to stare. Its annoying too. Fortunately to make up for the ignorant people, there are those who comment on her cute clothes, gorgeous lips, or just smile at us! And there was also the nice man on the plane who went out of his way to ask if he could help us unload. (my guess is those people are either a relative or friend of a child with special needs, a therapist, or a pastor!) OK OK OK...enough loathing in my self pity....so I'm still a little bitter.
Anyway, we're happy to be home. The vacation was wonderful and relaxing, but its nice to be home with familiar surroundings and equipment! Unfortunately, I was slapped in the face when I walked in my office to an absolutely insane calendar next week. Seriously, there isn't enough time in the day. I'm still working on finding a nanny for Kendall during the day, and before we left, I was in the throws of switching pretty much every therapist we have and adding additional therapy each week. Currently Kendall gets about 6-7 hours of therapy every week, but it looks like that may be stepped up to 8-10. Wish me luck.
Kendall is finishing up day #13 being seizure free. It still seems like a dream. Her eyes are already straightening out. She's rolling consistently from her tummy to back, and we are elated. Keep the prayers coming!