Thursday, August 27, 2009

No Sleep

Kendall hasn't slept in 48 hours. She sits there crying non-stop with her eyes wide open.

We looked at starting Melatonin, but decided against it.

I think she doesn't like the hospital, and since she's not feeling well she wants us to know it.

I thought eventually she's poop out and crash, but that hasn't happened yet.

Nonny held her all day yesterday until late. Justin and I tag teamed throughout the night. We had a nurse come in and rock her for 2 hours. I can't sleep when my baby isn't. There's no way around that.

We ruled a bunch of things out: she doesn't have RSV, no pneumonia, no ear infection, no flu, no swine flu, no fevers, the tummy x-ray came back normal, her heart sounds good, her blood sugar is starting to even out. Why won't she settle down? I thought their heavy duty rescue med would have knocked her out. This sucks. She won't eat from her bottle and we are force feeding her her solid food.

We saw the nurse practitioner today who mentioned the g-button before. She may have gotten wind that upset me. She didn't mention it today, and today it would have made sense for her to mention it. I would have handled it better. She needs to eat.

I believe once we are in our home and she's feeling better, she'll eat. I pray.

The head of the Endocrinology department is now officially our Dr. We like him. He's calmed my nerves. He thinks this is do-able. We've increased her Lantus in the morning, hoping this will minimize the corrections during the day. Kendall's acceptable Ketone levels should ideally be around 5. They have been fluctuating between 5.8-6.5. But we're getting closer. Her blood sugars are getting closer to the acceptable range. So, giving more insulin to correct the ketones would be a bad idea. We're hoping it will even out soon. Then we can go home. And Kendall can eat.

Thanks to all you guys for your calls, e-mails, and visits. We're all dragging today. And praying for Kendall to eat and sleep....

7 comments:

Reagan Leigh said...

My heart is breaking for you. I know exactly how you feel. I can't sleep a wink if Reagan is up crying. I just can't. It's such a miserable feeling when you can't console them and they can't tell you what's bothering them. I just want you to know that you (and Kendall of course) are in my constant thoughts and prayers.

Cjengo said...

I have been watching your blog like a hawk waiting on an update. I am hoping she sleeps, and eats soon. I so understand the lack of eating, and how upsetting it can be. Jude gets very frustrated any time he is out of the house lately. I think she will do much better at home.....I hope.

Jennifer said...

Jocalyn,
I just started reading your blog...I am a friend and co-worker of Jennifer's (Jude's mommy). I hear her talk about you and Kendall so much and as soon as I started reading, I fell in love with your baby girl. I am praying for you guys, hoping Kendall starts feeling better soon!

Jennifer

Heather said...

Just talked to Tera and she filled me in on all that is happening with Kendall.Oh my gosh .. poor sweet little girl.For some reason I lost all my links when my blog got changed so I haven't had your link in forever.I will add her and add her to our prayers of course.Hoping that the upcoming days find you getting things sorted out and Kendall home before you know it.Thinking of you in California.

therextras said...

It's easy for us to adopt the same stresses as those we care about. I'm feeling very bad for the time you are in right now. I take great hope from the confidence you have in your physician.

I would have thought the np jumped the gun if that suggestion had come to me. My expectation is that she can be maintained for fluid by iv and other (nasal) tube feeding would be tried before a surgically-placed tube.

Wishing I could spell you for a couple of hours in the rocker with her, too.

Thanks so much for sharing updates - helps me pray more specifically. Barbara

Caroline said...

Am pretty frazzled myself today so am finding it hard to say the right thing. Just wanted u to know I'm thinking of u. Hope Kendall gets better fast
xxx

Ginger said...

I think I just want to hold her and feel those chubby legs in my hands. She is totally adorable and the Florida pics are amazing...aren't grandparents the best too? They are just there to care for your child and love her just like you without any judgement. You are so lucky to have all that support and I can't blame Kendall, hospitals suck! Hoping she crashed out tonight and like everyone else following your blog.... I am thinking of all of you!!