Last night was a beating. No sleep whatsoever. Kendall also has ginormous mesquito bites all over her arms and neck which I'm sure aren't helping the situation. She received Insulin injections on the hour every hour. Her blood sugar has come down, she is stable, and is allowed to remain on our current floor instead of the ICU.
Apparently when we arrived she was already in diabetic ketoacidosis. No telling how long she's been that way. On the bright side, we caught it. Results could have been disasterous if we didn't. Of course, I'm irritated that te Dr. on call last Wednseday didn't tell us to come in. Hind sight.
The endocrinologist called me late last night to let me know the labs came back very surprising to him. Her CO2 levels were extremely low. It seems that metabolic acidosis combined with high blood sugar is significant with Type 1 Diabetes. She's obviously lacking Insulin. So we'll be dealing with that for the rest of her life.
Today of course the "diabetes educator" will be here to train me on even more things I never wanted to know learn how to do. Seriously, I have quite a few friends who are nurses or in a relative field...I NEVER had any desire to do anything of the sort. Ugh. They gave me a pre-test. I put "i don't know" as most of my answers because my brain hurts from information overload already. Again. I.dont.want.to.do.this. But I guess I need to put my big girl pants on and deal with it. So I will.
Right now I'm masking exhaustion with multiple cups of coffee. (I gave up caffeine a week ago, but desperate times call for desperate measures.) So we march on.
Still praying Mitochondrial Diseas is not the culprit. I'd like to think we just have Diabetes in addition to everything else. The thought of her organs shutting down makes me want to vomit.
Thanks for everyone's well wishes and words of encouragement. As always, I don't know what I'd do without my friends and family.
1 week ago