Kendall's Hope: WOW...

Tuesday, August 4, 2009

WOW...

Well, I thought twice about posting this...

Being the total pessimist that I am...

Afraid to speak it out loud (or write it)...

But I couldn't resist...

I decided I can't live my life in constant "what if" mode...

So, I decided to let it all go...

And share with the world (OK, just those who follow my blog)...

HOLY CRAP! No FREAKING LIE...

KENDALL HAD HER FIRST SEIZURE FREE DAY!!!

WOOOOOOOHOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

9 comments:

Jessica said...: I'm so happy for you guys that I could cry....wait, I am crying!! Tears of joy of course, with goosebumbs all over!!! Such amazingly, awesome, fantastic, way cool, better than great (do ya get the point?!?)news!!!!!! Big hugs and love to you all!!!!

(Told ya that I believed, I believed, lol!!) And....this is just the first of many more seizure free days ;)!!!; August 4, 2009 at 10:23 PM
Bronx Cataldo's said...: Way to go Kendall!!!!
Keeping the fingers and toes crossed that tomorrow will be as good as today; August 4, 2009 at 11:16 PM
Cathy said...: Hi Jocalyn

That is such fantastic news!!! Have faith that it will be the first of many. I remember Isabella's first seizure free day what a feeling. Its all good from here on. I have goosebumps, tears and happiness for you.

Cathy; August 5, 2009 at 12:07 AM
Val said...: sweet Jebus, you must be so proud! Way to go. I know the whole Family is jumping up and down!; August 5, 2009 at 6:51 AM
TwinsRock08 said...: Whoo Hoo. I'm so happy for you guys. This is great news!! Miss you guys.; August 5, 2009 at 7:15 AM
Lorrie said...: That's the best news I've heard all week! Awesome!; August 5, 2009 at 11:07 AM
Jennifer Ortiz said...: I am very very happy for you. It's such a great feeling to see your baby seizure free. I hope your life will become less stressful. You guys are always in my thoughts.; August 5, 2009 at 12:29 PM
Edward said...: Jocie, what great news. Kendall knows something is up by the way she is moving and giggling. Her head control seemes much better. Thank the Lord and the new diet. We love you guys with all our heart and soul Mom&Dad; August 5, 2009 at 1:19 PM
K D said...: so happy for you!!!; August 6, 2009 at 9:34 AM

What's the Scoop?

We are very open about our journey with Kendall. We're happy to answer any questions, and welcome all your comments! The one thing we don't want is to be isolated from our friends and family. I've been that person who thinks it is easier to just ignore a child with special needs and their family. I've feared hearing their story. I've been guilty of looking through a child with special needs. I've also thought and said "how on earth do you deal everyday?" Although it certainly isn't easy, we are a normal family...celebrating all the milestones our daughter hits (and maybe cheering a little louder in the process!) Let me tell you...it's been a long road with many bumps but the love and support we receive daily is what keeps us truckin'! Click here for the full story on our precious baby girl Kendall Ann, or scroll down for the quick recap! Thanks for visiting!

About Kendall...

Kendall Ann has blessed our lives in so many ways. She is truly a gift from God and has proven herself to be a fighter from the beginning. She was born with many neurological and optical abnormalities, which we now know is due to a stroke in utero...probably due to her Factor V Leiden mutation and two copies of the MTHFR gene (1-14-09). Oh, and NOW she has Type 1 Diabetes (8-19-09) And NOW (12-16-10) she has problems with her Mitochondria ... and NOW (2-11-13) a neurogenic bladder resulting in a vesicostomy. Of course there is a possibility of a Mitochondrial Disorder, and a possibility CDLK5 caused all the problems and Mito secondary...but we will never know, because we've decided no more testing! When she was born she came right home...no NICU stay...and we had no idea anything was wrong! She has undergone numerous hospital stays and a number of surgeries, but through it all, she has maintained a smile that wins the hearts of everyone who meets her. Please join us in our journey of life with a special little girl full of spunk and personality who happens to have multiple disabilities.