We're still plugging along. Since we were moved to the room getting what we need in a timely manner has become impossible. I understand the pace of things in the hospital, but I also believe a lot of that depends on your nurse and their load.
I do not think there is any excuse for Kendall not getting her ketogenic diet food. I'm so sick of having to ask for the same thing over and over again. The patient advocate is talking to the social worker who will be setting up a care conference on Monday. I think that is past due.
Like I said before, this floor sucks. We want to go back to the epilepsy floor. Those nurses are super sweet and on the ball. They have even come by just to check on Kendall. I just don't mesh with the nurse we've had here the past few days. All she's good for is going to the fridge to get our food(that I weigh out). I'm giving all the shots and feeds, baths and gbutton cleanings.And her decision to roll her eyes at me was a bad move.When I told her the IV was blown and I turned off the machine because it was infiltrating and it needed to be taken out she decided to flush it and argue with me.Her arm looked like Popeye and The freaking thing was leaking blood and antibiotic all over the place. Now I only talk to the charge nurse!!
But we're still here and will be for a while. They are still tweaking the insulin and monitoring her hydration. I want to be home but what do you do?
Believe it or nor we are very happy to be here. I'm thankful for our decision a while back to keep everything at Cooks. I can't imagine having each Dr or therapist at a different hospital. Having a group that works as a team definitely makes a crisis like these past few weeks easier to manage. It would have been way worse otherwise.
This week, I tried to see his future
4 hours ago