We made it home this afternoon.
Sorry I haven't posted. Its been a crazy busy few days. And well, coming home from the hospital is a chore.
Blood sugars are leveling out...good thing our Dr. was doing rounds yesterday and HE knows how to listen! We decreased her Lantus and she's been fine. She's tolerating her feeds perfectly. I'm a bit concerned about some redness around her belly button...and the g-button. They told us what to look for, but I don't remember them mentioning her belly button having a red circle around it?! Her poor belly is still a little hard and puffy. She also developed a pretty bad runny nose. There seems to be a lot of drainage, but no fever and it isn't in her chest...but we'd be silly to think we escaped a week in the hospital during the worst outbreak of the flu unscathed...so I don't think we're out of the woods yet.
We got a pretty cool pump and came home with a bunch of supplies. The Atrium at the hospital was having a craft fair, so I bought Kendall a really cute pink and brown polka dot back pack for her pump! They even embroidered her name for free, so at least she'll be stylin.
I don't feel that relieved feeling everyone said I would have after the surgery. I do think its pretty cool I can burp her manually and just squirt in the meds and formula! But its still a lot of work. I'm sure tomorrow when I don't have to spend 3 hours getting a 4 oz bottle down her I will be relieved. Right now I'm just exhausted and surrounded by loads and loads of laundry and things to find places for!
Thank you all for your words of support this week. I couldn't have made it without you. My Dad was an awesome help keeping Kamden in a routine...giving us breaks at the hospital...and he cleaned my house! Nonny and Poppy helped us get through our stressful day of surgery. Also, a super big thanks to Theresa for the lunch and comic relief yesterday, and my dear sister for her constant support and love. She visited us in the hospital, helped with the swallow study, came over tonight, folded my laundry, and bought Jussy and I dinner. We are very grateful to you all! (It was also an awakening to me how much I really depend on my mom! Since her immune system is so compromised right now, she couldn't be there, and I missed her BIG)
Also, our dear friends on P4...as always, we love you guys. The Dr.'s, nurses, etc.. this time around were even more exceptional than they always are. I can't say enough good things about the Neurology team at Cooks. Also, we had the very best in house Pediatrician in the world. He is by far the best Dr. we have ever dealt with. I wish we could see him all the time. They make a tough time much easier. But I hope we don't have to see any of them for a long long time.
This weekend we will be getting back into the groove. I need to get organized, get back on a running schedule, and get a pedicure. In that order! Maybe I'll actually have a chance to do those things since I wont be spending every waking minute shoving a bottle in Kendall's face!
Oh, and Happy Birthday to my big 9 year old Kamden today! I will post pictures from his party last week soon.
Enjoy your weekends!
Kooky but good
1 day ago