Kendall did well with her upper GI test. They had to drop a tube...not pleasant. We were also able to fit in a swallow study. Everything looked fine on both. No need to thicken any liquids as there's no sign of aspirating (I could have told them that) and we are a go for surgery tomorrow.
It is scheduled for 11:30. Pray for us.
Kendall has gone two days now without any Lantus in the morning. Apparently it is unheard of for a Type 1 Diabetic to be without insulin. They lowered the number we correct with to 200. Around 1:30 she was at 222, so they corrected with a half unit of Humalog. We went to the swallow study, she ate, when we returned she was a bit peaked. I checked and she was at 38. Clearly the Endocrinologist on call didn't listen when I said she was sensitive to the quick release insulin. She had 2 IVs of D10 then she was at 95, then an hour later she was back in the 30's. So frustrating. Our poor nurses are probably drawing straws to see who gets her tonight.
Hopefully our Anesthesiologist gets a good rest tonight...and will be good to go in the morning. With her crazy blood sugars and constant threat of seizures, she's beyond complicated.
Again, please pray for Kendall to do well in surgery with no complications, level blood sugars and to remain seizure free. Also, for our Dr.'s and nurses. The next few days will probably be a little stressful, but I will try to update when I can.
1 week ago