Today was a bad day.
Kendall won't eat. AT ALL!! Last night she was running a fever (rectal 101) so not too bad, but she wasn't feeling well. I feel defeated since I've been absolutely and completely paranoid about getting sick. I've turned into a Lysoling, anti-bacterial sanitizing freak.
I went to the pharmacy trying to pick up Tylenol suppositories...due to the Keto diet that's really the only option we have for fever relief...oh, and the fact that she won't eat. By the way, its the only pharmacy I have left in a 10 mile radius to go to. I've had a full blown temper tantrum in pretty much every other one in our town. I ended up not getting what I needed, and leaving in an even worse mood.
Last night Justin and I tag-teamed feeding Kendall pants. He held her while I strategically positioned a spoon of formula in her mouth while simultaneously singing songs and bouncing her. It didn't work. She went to bed without medication for the third night in a row.
I feel like I'm at the end of my rope.
Today was more of the same. Her fever completely went away though. I attribute that to my non-stop praying in lieu of sleeping last night! I think she is just teething really badly. Who knows?! I could make a list of possible reasons, but it doesn't really help anything.
As if my patience weren't worn thin enough...I was dealing with Insurance companies ALL day. Seriously, I ran two phone batteries completely dead today. My ear is permanently embedded in my shoulder. For almost a year now, Kendall has been part of the Medically Dependant Children's Program (in Texas its a Medicaid waiver program where the service is based on the child's income not the parents) It was introduced to me by my friend Dana...a life saver. Kendall fortunately receives Medicaid secondary to our Primary Insurance Aetna. I thought this would be a good thing, and it has helped us tremendously. But we are at a stand still right now. See, we can't get any of her Diabetic stuff covered. The pharmacies contact Aetna, who says we have to do mail order...then I had them convinced we needed to bypass that....so we can bill Medicaid secondary....then the pharmacies say they cant bill Durable Medical Equipment to Medicaid...Medicaid says we have to go to a specific pharmacy to do that....so we do.....then they can't bill Medicaid because Aetna isn't being billed first....so I contact the pharmacy....who contacts Aetna....who contacts me.....who contacts a Home Health Agency....who contacts my Dr....who contacts me....to say the home health can't deliver diabetic supplies....so I need to contact a company who can....who says Aetna needs me to do mail order!!!!
Long story short, we are going to have an $80 co-pay twice a month for Kendall's diabetic equipment. This doesn't include her KetoCal formula. I have to get that through WIC, which we qualify for since she has Medicaid. But I also had a temper tantrum in that office, so I don't particularly want to go back. Oh, and I'm a germ-a-phobe and that office is crawling with germs. Want to know the funny thing?! If we had a g-button it would all be completely covered. Want to know an even funnier thing?! If we didn't have insurance at all, Medicaid would just pay for everything. hmh...
Grrr.... nobody has any answers, and we are now a one income family! And last time I checked, Type 1 Diabetes and intractable epilepsy don't go away. We have a champagne baby on a beer budget.
1 week ago